Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-26-2009, 02:58 PM #11
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi Tbarney!

Hi Tbarney!I've been on Imuran for about 5 months now - don't understand why I'm having a reaction now! My blood work was fine, so I'm no longer scared about that!

Cellcept was great! The only thing I didn't like about it was how much it costs! I was even actually able to go down to 15 mgs of pred while I was on it!

How are you feeling today? Are you feeling better?

Big hugs!
Erin









Quote:
Originally Posted by Tbarney View Post
I still am trying to decide which to take Imuran or Cellcept. Erin how long had you been on Imuran?
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote

advertisement
Old 06-27-2009, 06:42 PM #12
xmas 25 xmas 25 is offline
Junior Member
 
Join Date: Apr 2009
Posts: 92
15 yr Member
xmas 25 xmas 25 is offline
Junior Member
 
Join Date: Apr 2009
Posts: 92
15 yr Member
Default

###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]
xmas 25 is offline   Reply With QuoteReply With Quote
Old 06-27-2009, 07:12 PM #13
momma3love momma3love is offline
Junior Member
 
Join Date: Mar 2009
Location: Oregon
Posts: 51
15 yr Member
momma3love momma3love is offline
Junior Member
 
Join Date: Mar 2009
Location: Oregon
Posts: 51
15 yr Member
Default

Awwww Erin.....I am sorry you are having so many difficulties. Once you start becoming allergic to meds it seems to keep happening. So be careful now. I really hope you feel better soon. Allergic reactions seem to take a lot outta me. Take care and better luck with the Cellcept right? I will keep my fingers crossed for ya.
momma3love is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
erinhermes (06-28-2009)
Old 06-27-2009, 07:40 PM #14
sabimax's Avatar
sabimax sabimax is offline
Magnate
 
Join Date: Jan 2008
Location: michigan
Posts: 2,186
15 yr Member
sabimax sabimax is offline
Magnate
sabimax's Avatar
 
Join Date: Jan 2008
Location: michigan
Posts: 2,186
15 yr Member
Default

my dad, is peeling hands....we assumed from his chemo he was taking back when ... but dr also said, poor nutrition can cause this too... good luck and hugss,sarah
__________________

.
KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!!
.
sabimax is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
erinhermes (06-28-2009)
Old 06-27-2009, 09:28 PM #15
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
Default

Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=
__________________

.
jccgf is offline   Reply With QuoteReply With Quote
Old 06-28-2009, 02:29 PM #16
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi xmas~

Hey hon! how are YOU doing today? I have been eating my comfort food = chocolate and lots of it! I know it will get better soon!

Big hugs!
Erin


Quote:
Originally Posted by xmas 25 View Post
###**##** how much can you take? i hope you just stuff yourself with sonme gooey ice cream and fresh bread with butter.[those are my comfort foods]
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 06-28-2009, 02:31 PM #17
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi there!

Hello and welcome! What wonderful advice! I'm going to see my neuro next week for another follow up - I'll ask him to give me the test!

Thank you!
Erin


Quote:
Originally Posted by jccglutenfree View Post
Is there any chance you could have been exposed to strep, and missed it?

http://www.google.com/search?hl=en&r...n&aq=f&oq=&aqi=
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 06-28-2009, 07:57 PM #18
justdeb justdeb is offline
In Remembrance
 
Join Date: Jul 2008
Posts: 63
15 yr Member
justdeb justdeb is offline
In Remembrance
 
Join Date: Jul 2008
Posts: 63
15 yr Member
Default Reaction

Erin, what you describe is more likely a reaction to the IVIG than anything else. IT is a common reaction to it. Do read up and see what ya think. PRaying you get betta soon.
justdeb is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
erinhermes (06-28-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Has anyone heard from BJ? Brokenfriend Survivors of Suicide 12 02-16-2009 02:46 PM
Has Anyone heard of MRF? mbabic Multiple Sclerosis 3 10-20-2008 08:52 AM
Anybody heard of this one. razzle51 Vitamins, Nutrients, Herbs and Supplements 3 07-14-2007 12:08 PM
has anyone heard of this? sue k Chronic Pain 3 06-13-2007 09:18 PM
Has Anyone Heard of This? buckwheat Thoracic Outlet Syndrome 2 05-12-2007 03:33 AM


All times are GMT -5. The time now is 11:46 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.