Hi everyone! I've missed you all but have had a little trouble strength wise since my eye visit, and working and having company. WHEW!

I had my appointment with the neuro at the MDA this morning, and imagine this - SHE DIDN'T MENTION MS!!!! I will be scheduled for a SFEMG and spinal tap. She says she's not 100% convinced either way on the MG yet, is doing the spinal tap to check on ALL the Herpes family of viruses since my HSV-1 was so high and the Acyclovir has had such a positive effect on me.

The SFEMG is kinda two fold. Either confirm the MG and/or detect other issues. She mentioned a new one for me - periodic paralysis.

And guess what, when checking my muscle strength which was generally pretty good this morning, she said that it's like a car problem. You go to the doctor and it doesn't show up. It was so nice to have a doc acknowlege that as a problem for us! I told her so, too. So often we go, they test, we're strong that day, and they end up doubting everything we say!

I told her I am so sick of not having answers and having to deal with all this, and she agreed it's been a long time to suffer, but cautioned it might take them awhile to nail my problem(s) down. Just knowing she intends to do that helps the attitude so much! Even though the anti-virals have helped so much, without formal dx's we always have that nagging feeling don't we. For one thing, if they give me a dx maybe I won't have to go through all this testing anymore - sheer HEAVEN!! that would be.

No more docs giving me conflicting dx's - no more "it may be MS" - no more taking back dx's I already have! So I guess I can endure a little longer with the hope of a FINAL resolution.

Hope you all have a wonderful and strong day tomorrow. I'm going camping (finally) this weekend, so probably can't get back to check on you all for a while. Wish me luck on catching a BIG fish (and have the strength and endurance to actually get it into the boat!)

Love to all!