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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Again yes, Nicknerd, at the beginning, it was difficult for me to drink, not only to swallow, but just to put my lips on the glass without dripping...
Maurice. |
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#2 | ||
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Junior Member
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I, too, am having a lot of problems with my voice (a new thing for me). At it's worst, I lose my voice almost entirely. After working way too much for quite a while, I completely crashed the first of April, not able to walk, speak above a whisper, breathe, etc. It was rough. I am finally getting better although still not able to work, walk through a store, etc. However, now at the first sign of weakness, my voice goes. Plus, my voice still doesn't sound normal even when I'm at my best. This is all with aggressive treatment. It's very frustrating!! In another post, someone asked about a sore neck, too. My neck muscles are also extremely weak and my neck gets so sore when I get tired! It's all due to the MG according to my Neuro doc and my general doc. I am sure about it, too. It does get better with rest and with Mestinon - it just doesn't last.
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. Sharman |
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#3 | ||
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I don't have voice problems, but I do get a thick feeling with my tongue. I slur my words and sound like I am drunk. I feel like I am talking with a mouth full of thick oatmeal.
My neck always bothers me, that was one of my first symptoms. I feel like I always want to crack it, but I can't. |
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#4 | |||
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Member
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My neck is really weak as well as my chest muscles...Sometimes I wonder if that's why I'm having twitching in my fingers, mainly the left ones. Whenever I'm in a seated position at a desk, I lean on my elbows because I need to support my torse...That weakness started to get really pronounced when I had a viral infection about a year ago...I remember going back to work and not being able to sit upright for too long without feeling like my chest was caving in or something, or my torso was turning to jello. I started leaning on my elbows all the time, even while eating.
I now notice that I have seemingly permanent bruises on both elbows, but mainly the left from always supporting my weight with that one...I must have some kind of nerve damage (ulnar nerve maybe?). That, along with the TMJ makes me think that MG is a real safety hazard! I think there are probably a lot of secondary conditions that might come from the compensation we have to do in supporting the weak muscle groups. |
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#5 | ||
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Member
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Yes! I have really weak neck muscles as well. CAn't sit for too long, or I'll feel like my head's dropping or my neck's hurting like crazy. Nowadays, i don't bother supporting with my arms as my arms are weak too. Lol. Sometimes I just lay back in my chair and lean my head back to rest on the back of the chair...
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