Hi Carrie,

Sorry to hear you aren't feeling well. I know how frustrating it is to have to spend so much time on the couch when there are so many things that need to be done. It must be so difficult to have 3 young boys to care for. I just spent over a week and a half on mine, but I made it off today! Having had this for 5 years I'm sure you know a great deal about it. May I ask when you had your Thymectomy? Have you seen any improvements yet? I would have to agree with Annie and ask your doctor to check your electrolytes & Thyroid. I've had hypothroidism since I was 21 and it will cause fatigue. Have you tried eating bananas? If your potassium is low, they will help some of the cramping in your legs especially. I hope the imuran helps along with the mestinon and you start feeling better. Take care.

Hugs,
Pat

I had my thymectomy in April, the 14th to be exact. So it has been nearly 3 months. I have not noticed any improvements as of yet. Other than my chest pain has gotten much better. I have had hypothyroidism in the past. But recently when checked I have been fine without medicine. They just checked it again in June and they did not say anything about it so I am assuming it was still fine. Hopefully, who knows. I dont really like bananas, but I did buy some potassium supplements. And then realized they are only 3% of daily value so I dont know that is going to help. And I am really hoping the Imuran will help too. Thanks for the info. Hope you are having a good day.

Hugs
Carrie

Hi Carrie,

Only three months, you're barly healed from that. While it took me 3 years to see the full benefits of my thymectomy, I did see small changes almost daily after the first year. While we are all different with this desease the same is true for our thymectomies. As you know just from reading the posts here, almost everyone improved dramatically over time or went into remission. You have so much to look forward to and I hope you start seeing improvements soon. In the meantime I hope the combination of Mestinon & Imuran helps you to feel better and stronger. It was so nice 'talking with you'! Feel better!

Hugs,
Pat