My B12 was a little low last year and I was way low on D. I have taken B12 ever since and my Dr. had me on prescription doses of D for a couple of months. Now I maintain with 2000 IUs of D a day. That seems to be working to keep my level of D up. The B12 I'm taking has also worked to keep my level up. No, there was no testing done to determine the cause of the parasthesia. The only tests were the EMG and the glucose tolerence test. My neurologist attributes it to the pre-diabetes and I have never been at peace with that. It and the tremor started so suddenly. What other tests are there? I do drink coffee. I stopped drinking caffeine last year when all this happened. I fear it will cause the tremor and parasthesia to be worse. I did not know about caffeine helping. I also get migraines. In fact the neurologist believes this is what caused my mini stroke. (I now wonder if I had a mini stroke or if the episode I had was MG. I plan to ask my Neurologist next appointment.) I wondered for years if getting off caffeine would help the migraines go away. I don't know. As my doses of Topamax increased and we got my level of D up and B12up and my blood sugar has gone down my migraines are happening less frequently. I still have things that can trigger a headache but the headaches don't turn into migraines as easily. As I have thought today about what you all have shared, I know that I am going to have to do better at resting when I get tired and pacing myself. I can't continue to push through indefinitely.
Thanks so much

What type of B12 do you take? Capsules? Tablets? Sublingual B12 (you put it under your tongue and it absorbs directly into the blood stream). I take sublingual every day. I had a severe B12 def. back in 1999 and only the sublingual brought my #'s up.

Since they said you had a TIA, did they do any clotting tests to see if that could've contributed. I don't want to make you dizzy but some clotting disorders, especially antiphospholipid antibody syndrome (APS) can go along with other autoimmune diseases. Have they checked your ProTime and INR?

Have you been tested for celiac disease? If not, please do! Having both a low Vit. D and B12 level would make me wonder about celiac disease. Go to the gluten forum and ask about it.

Watch out for foods that naturally contain MSG like tomatoes, yeast and cheeses. Those can bring on a migraine.

Sometimes doctors like quick fixes instead of having to think about something. If you don't feel good about a diagnosis or what they are doing, keep asking questions and asking for more ideas of what could be going on. It's your right! You pay them, they should give you a good service in return.

For the TIA, did they do a brain MRI to diagnose it?

I know it's hard to not push. I still have days when I do it cause I get so sick of not doing much!

Annie

Hi CKitty,

Welcome to the group! Well as you can see by all the wonderful responses, you've come to the right place. Having a great neuro you can comfortably communicate with is key. Write down your questions & concerns and take them with you to your next office visit. Any new changes, call him/her and let them know. Rest whenever you start to feel fatigued...even a short rest may help. Don't get over heated and cool down quickly if you do. Everyone is different with this disease and as you go a long you will learn what works best for you. We all know too well how frustrating it is not to be able to do all the things we could before this wonderful disease. After 10 years I still on occasion take on too much and the MG wins everytime. Take care and we are all pulling for you.

Hugs,
Pat

welcome ckitty !
Awsome bunch here, they have all helped me so much !
Mary

Hi Maryec,
Great to meet you too! I have gotten so much great support and information already! Hope you have a good afternoon. Take care.

Ckitty