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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#31 | |||
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It IS an awesome article, huh? Most people simply do not get it, but hopefully put in those terms, they will.
Hang in there, our little fighter! Love, Erin ![]() Quote:
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Erin . |
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#32 | ||
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Hey all of you! Thanks so much, am so you enjoyed that story, I loved it a lot too. Still bring tears to my eyes when I read it. I'm still fumbling with the explanation bit, so usually I just smile and believe that when people say I look good, I look good. Lol. Though there have been occassions I feel bad inside, I just ignore that and choose to believe I look good. Hey we all look good everyday! We're all in this together, so don't ever feel that you're facing it all alone! You guys are a great source of support to me, and just wanted to be here for all of you!!
As for me, somehow am walking worse now, climbing stair's becoming much more difficult for me. But am still walking, will continue to do so even though it means walking a lot a lot slower and weirder. Lol. But I guess its still better than not moving at all. Have tried going out for short periods these few days, didn't fare too good with walking, am always blocking people's way but have learnt to ignore them. Lol... ![]() |
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#33 | ||
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Junior Member
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Hey Connie,
I am very sorry to hear you are struggling with your walking. I hope you will keep on ignoring them and keep on going out when you can. Thanks so much for your encouragement. ![]() ckitty ![]() |
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"Thanks for this!" says: | ConnieS (07-19-2009) |
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#34 | |||
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Member
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Hi Connie,
I found even when I had a walking stick people still seemed to get frustrated with my lack speed and coordination. I tried to ignored them and kept shuffling along, smiling to myself thinking I might have taught them a liitle patience, or made them think. take care Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx Last edited by redtail; 07-19-2009 at 01:29 AM. |
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"Thanks for this!" says: | ConnieS (07-19-2009) |
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#35 | ||
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Member
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ckitty: yes I will. Sometimes I'll try to run up the stairs then realize that my legs aren't what they used to be. Lol... They simply refuse to move that fast anymore. Haha.. But I'll still try to go out whenever anyone comes to take me out. Especially when the weather's so wonderful here! Do hope you're now feeling much much much better!
Kate: Yup! People are also staring at me cos I'm 26 but walk like I'm 80. I smile a lot to myself nowadays, sometime am also thinking why are all this people rushing. Don't they know how to appreciate slowing down? Am just thinking that they're missing out a lot if they simply rush everywhere like that. Please take good care of yourself too! |
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"Thanks for this!" says: | Ckitty60 (07-19-2009) |
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#36 | ||
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Quote:
Love Rach ![]() |
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#37 | ||
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Connie, I am so sorry you are feeling so weak and are having such a terrible time walking. I hope you get a lot of company so you can get out as often as possible, even for a little fresh air.
Rach, I am so sorry to hear you are feeling so ill. I wish you all the best with your upcoming Dr. appt. Stay positive, you have so much in your favor. I will keep you both in my thoughts & prayers. Feel better and take good care of yourselves. ![]() Hugs, Pat |
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"Thanks for this!" says: | rach73 (07-20-2009) |
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