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Old 07-14-2009, 06:03 PM #11
SharS SharS is offline
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Add me to the list. I've had the same problem with choking and coughing, more choking than coughing. A few times, it's been pretty rough. You do have to be especially careful about eating and talking at the same time.

That's so interesting, Rumpled, what your doctor said about finishing your food. For a while now, I can't finish my food. It's felt like it just wears me out to try to finish everything.
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Old 07-14-2009, 06:41 PM #12
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Help Be careful guys!

Hello all! Just thought I'd put in my 2 cents as well......I had MAJOR problems swallowing - even with my own saliva - used to spit it into tissues all day long. This was b/4 my dx and when EVERYONE was telling me I was OK - just depressed........

THis is very serious stuff! Really and truly! You NEED to let your dr's know what is going on - I aspirated into my lungs and it was awful.....

Please, please take it ez and let your drs know ASAP!

Big hugs!
ERin



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Old 07-14-2009, 07:09 PM #13
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Hey Erin,

Yes, it is very serious and I hope everyone tells their doctor. My GP knew I had it and I told my neuro the first time I saw him in 01. Mine is so much better now compared to what is use to be. I didn't know other MG'ers had it too because I never met anyone with MG or 'talked' with others with the disease until I found this incredible site and all the wonderful people here! I hope you are feeling better today. Take care.

Big Hugs,
Pat
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Old 07-14-2009, 08:11 PM #14
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I just plain get tired of chewing sometimes. I tell my husband that it's just too much work to finish eating. It's not worth the effort or the discomfort.

Along with this I gave up chewing gum about 5 years ago. Pure torture.

Shannon

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Originally Posted by SharS View Post
Add me to the list. I've had the same problem with choking and coughing, more choking than coughing. A few times, it's been pretty rough. You do have to be especially careful about eating and talking at the same time.

That's so interesting, Rumpled, what your doctor said about finishing your food. For a while now, I can't finish my food. It's felt like it just wears me out to try to finish everything.
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Old 07-14-2009, 10:08 PM #15
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Hi Shannon,

its a horrible feeling isn't it, not having the energy or strength to finish a meal, especially when its so nice. Thankfully I don't have that problem to often, if I feel tired I'll have something easy to eat.
Kate
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Old 07-15-2009, 03:55 AM #16
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hi,
I apologise for the lateness in getting involved in this one! Ill blame it on the time difference.

I reguarly choke on my own saliva, once or twice a day. I can and have choked when eating and drinking. On the odd occasion but only for minutes have been unable to swallow or just have a weak swallow which is the weirdest sensation in the world.

I was eating some baguette the other day and ended up giving it to the dogs as I couldn't do battle chewing it anymore.

That was interesting, who ever said about leaving food. I have been doing that for months now. I get halfway through dinner and I can't eat anymore, even though I have reduced my portion sizes. I just feel full. Im a big girl and although I haven't gained weight I have stayed the same which is unusual for me as I can just look at a chocolate cake and gain 5lb! Ive realised Im eating smaller amounts across the day as I can't do a big meal, like I would have before. So mixed blessings! lol

Thanks
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Old 07-15-2009, 07:20 PM #17
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Smile Hello all!




When I was really, really weak, I would only eat after taking a nap or sleeping through the night. I kept a stash of chocolate by my bad, as well as Ensure to choke down. Now I cannot STAND the smell of Ensure - just makes me remember the bad times......:

If you are too tired to eat, take a NAP and then try to do so. I also noticed that liquids were just too thin (kept choking) so I added some mix to make them a bit thicker - it really, really helped! You may want to ask your dr's about it.

Nasal aspiration is a real concern when you sound "drunk" or too "nasally" - this is not fun, so please, please do not push it. For me, that meant no soda for over a year now - just too darn scared to try one. Oh well! It's better for me anyway!

Hope this finds you all stronger and HAPPY!

love,
Erin

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