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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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Hey Erin,
That's so good he's having that put in. I hope you do well and feel stronger on the plasma exchange. I felt great after having mine, it just took a while to kick in. Glad you are having the pred reduced too. Take care. ![]() Hugs, Pat |
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#2 | |||
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Senior Member
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Hey sweetie
![]() My sweetie and I are alone tonight which means one thing: going to SLEEP early! ![]() I'm going to have the exchange every 6-8 weeks for quite some time - a long time, but am looking forward to no more pricks! My little veins have given up on me! LOL ![]() Have a GREAT night! Erin ![]()
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Erin . |
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#3 | ||
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Member
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Quote:
I'm feeling much better and stronger, thanks for asking. Thinking back, I would say it took just about a week. I had three exchanges, 8 bottles each time over a 6 day period. I couldn't believe how much stronger I felt. I know it had a lot to do with how well my surgery went and recovery. One thing it didn't help was the double vision, but the mestinon took care of that. I'm so glad you don't have to get stuck all the time now and you can go home after you have it. Plus it doesn't take too long. Well, you have a good nights sleep! ![]() Big Hugs, Pat |
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#4 | |||
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Senior Member
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Thanks for the info! I think of the 2 - IV IG gives me the BOOST sooner, but the actual plasma exchange will aid in my goal of remission!
![]() Now I just have to wait for the mountain of paperwork to be handled by my insurance company in order to have my port/shunt put in! ![]() Devon is STILL @ my sis' house, so it has been quiet, but we are planning on going to our friend's home 2morrow night for a spirited game of cards! YAY! I NEED nights out like that! They are so thoughtful to have us over - that way I won't worry about my home looking like a tornado just blew through! ![]() Do you have any plans for the weekend? Big hugs! Erin ![]() Quote:
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Erin . |
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