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Old 12-09-2010, 05:57 AM #11
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
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Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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What I think is going on for me is that the mestinon is affecting my BP. I think I am pretty out of shape at this poiint and I think that affects some of what goes on too. I know that in the morning some days my chest aches. I know that pushing water and getting mestinon in me can make that stop. Given the frustration at the university with my case I havent brought this up yet except breifly with my pulmo. Honesly I am afraid it would get used to take my mestinon away.

I am putting up a link here that may be of interest. I have read alot on autonomic dysfunction and POTS and related areas like low blood volume as I know something goes on with me around these things. My internsit said that is why I rally when I get IV fluids as my daughter said. She was the one who said to increase salt along with being sure to get a gallon of water a day. This simple treatment did reduce incidents I was having. Still have the chest ache.

http://en.wikipedia.org/wiki/Orthostatic_hypotension

Annie59
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Old 12-14-2010, 03:47 PM #12
Annie59 Annie59 is offline
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Annie59 Annie59 is offline
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Posts: 439
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Mary, has the salt and water helped? My doc said the same thing when my daughter said mom get better with IV fluids. She said I think you have POTS. And said the treatment for that is lots of salt and a gallon of water a day. I was already in the ball park witht he water but did the salt and that ended the attacks I was having that were like what you explained tho got so severe I could hardly stand and walk well and went To ER once.
annie

Quote:
Originally Posted by maryec View Post
Mine was 89 over 60 on Monday, I was having one of my weak dizzy days, with the blurred vision, now I know why! Doc. told me to drink extra fluids & eat more salt ! I never thought I'd hear a doctor tell me to eat extra salt ! LOL....

Mary
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