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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-09-2010, 05:57 AM | #11 | ||
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What I think is going on for me is that the mestinon is affecting my BP. I think I am pretty out of shape at this poiint and I think that affects some of what goes on too. I know that in the morning some days my chest aches. I know that pushing water and getting mestinon in me can make that stop. Given the frustration at the university with my case I havent brought this up yet except breifly with my pulmo. Honesly I am afraid it would get used to take my mestinon away.
I am putting up a link here that may be of interest. I have read alot on autonomic dysfunction and POTS and related areas like low blood volume as I know something goes on with me around these things. My internsit said that is why I rally when I get IV fluids as my daughter said. She was the one who said to increase salt along with being sure to get a gallon of water a day. This simple treatment did reduce incidents I was having. Still have the chest ache. http://en.wikipedia.org/wiki/Orthostatic_hypotension Annie59 |
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12-14-2010, 03:47 PM | #12 | ||
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Mary, has the salt and water helped? My doc said the same thing when my daughter said mom get better with IV fluids. She said I think you have POTS. And said the treatment for that is lots of salt and a gallon of water a day. I was already in the ball park witht he water but did the salt and that ended the attacks I was having that were like what you explained tho got so severe I could hardly stand and walk well and went To ER once.
annie |
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