Hi Allen,

welcome to the forum.
I notice being in crowds sends me into spins,
firstly because of the noise, and secondly because I'm concentrating so hard not to bump into people or trip on things my eyes start to close, they once would have tried to go into double vision mode. They also get the shakes, move very quickly from side to side, this is very disconcerting if I'm walking around.

I do perspire lots even in winter, but use to do this pre mg, so its a hard one. I do have more night sweats which can also be from pred, as well as I guess from mestinon.
hope this helps a little
Kate

Hi Allen,

Welcome to the group! Since I've had MG, going on 11 years, I can't take the heat at all and perspire a lot. A temp of 80 now feels like 100 to me. Mestinon often makes it worse, even a low dose. My vision is often effected when I'm in crowds, especially when I'm in a store. For me the lighting has a lot to do with it. They can be fine and as soon as I walk in I start getting double vision. Do you have only ocular MG? Take care.

Hugs,
Pat

Welcome to the best MG support site on the internet. I have had MG over 18 years now and I can say when I was on Mestinon I felt the same way as you. Have you had a thymectomy yet? I had one and did not have a thynoma but I did go into remission for many years. I am now out of remission but I don't take any meds as the side effects cause my MG to worsen. As for crowds or shopping or anything I have to focus on I get double vision and dizzy sadly I guess thats just something we have to learn to live with when we have MG. I find that tilting my head helps with the vision. As for the sweating, that is indeed the mestinon. I hope you feel better soon and know that you have many who understand you here. Feel free to ask anything.

I have been taking mestinon a while now and my eyes still can't cope if there is a lot of visual stimuli.

Its almost as if they can't move quick enough to focus. It can be very disorientating and I have had several falls because of it.

Welcome to the site and ask as many questions as you like. I think you'll find we are a pretty friendly bunch and if we don't know something we will try and find out!

Nice to meet you

Love
Rach