Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 07-21-2009, 10:50 AM #5
Joanmarie63 Joanmarie63 is offline
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Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
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Welcome to the best MG support site on the internet. I have had MG over 18 years now and I can say when I was on Mestinon I felt the same way as you. Have you had a thymectomy yet? I had one and did not have a thynoma but I did go into remission for many years. I am now out of remission but I don't take any meds as the side effects cause my MG to worsen. As for crowds or shopping or anything I have to focus on I get double vision and dizzy sadly I guess thats just something we have to learn to live with when we have MG. I find that tilting my head helps with the vision. As for the sweating, that is indeed the mestinon. I hope you feel better soon and know that you have many who understand you here. Feel free to ask anything.
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