Another ER visit....waiting.....

maryec · 08-10-2009, 06:25 PM

Carrie
The sad thing is if you went into crisis right now, & were admitted into the hospital, you would get your plasma right away, seems like when you are an out patient, & will save insurance money, they drag there feet, but happens over & over again, doesn't make sense to me. Do they really think it is going to go away or something?
Hope you get an ok soon!
Mary

erinhermes · 08-09-2009, 07:41 PM

Hey honey! I am so sorry you are having to go through all of this! It is just not right!
When I was in last Saturday, they tested EVERYTHING - my arterial blood gases, 02 levels, EVERYTHING, plus my neuro was THERE to make sure they checked me out.

I don't know why you are getting the runaround. This is NOT rocket science.
I think a lot of drs suffer from high functioning autism - hence the lacl of empathy - my son has it as well, so I am NOT making light of it @ all, but I do truly believe that.

I remember a trip to our lake house b/4 I was dx'ed. I kept telling Mike I was having problems breathing, and we thought about turning around but I really wanted to see my grandma, so we kept on. By the 2nd day I felt much better. I was even able to get my housework done, but couldn't eat anything and was down to ensure - hate that stuff!

You may want to call your dr and ask (for future reference) that they test you for everything while you are @ the hosp.! Also, you need to stay overnight - just in case. They made me stay even though I begged to go home!

I'm praying for you, honey!
Love,
Erin

Quote:

Originally Posted by momma3love

Hey all. This last week has not gone very well. Last friday I saw a different neuro but in the same office as the one I usually see. He was actually new to the office. I liked him tho. He put through orders for me to get plasma done. So I have to wait for that to go through with the insurance company and what not.

In the meantime I of course continued to get worse. I went to the local ER on Sunday night. They were swamped and called my on call neuros. They wanted me transferred to their ER. This is about 2 hours away from where I live. So they say it is ok for my bf to drive me up there. This is the worst I have ever been. I was not able to hold my head up or take anything more than a shallow breath. But of course my O2 stats are fine. Supposedly they are going to admit me through the ER when I get up there. This is the only reason I go. Can you guess what happens after I drive all the way up there, wait for several hours in the waiting room and then for a doctor to see me, yup THEY SENT ME HOME!!!!!!!!

Granted I was feeling better than when I had entered the local ER, but they did not do anything to help me. I would really like to know why this happens to me. Why do I feel better on my own??? This is why I had stopped going to the ER for the longest time. They usually make me sit and wait and I feel better. Does anyone else have this happen? Or know why it does?

Well I am still waiting on the insurance company to say yes or no on plasma. I am still very weak but have not gotten that bad again yet. I am very afraid I will get bad cuz I know I will not go back to the ER again. I did not have the money to go up there the other day for nothing. I told the nurse as I left that next time my family will have to call 911 after I pass out, thanks to this experience. I know that they could have kept me because some of my tests came back iffy, as the neuro put it. Doctors just don't understand what their decisions cost us.

So I am very frustrated and waiting as patiently as possible. I really hope everyone else is doing better than this! I wish you all a happy healthy day today!

momma3love · 08-09-2009, 10:59 PM

Hey Erin!
I totally agree about the autism thing. My lil sis has it. And doctors definitely do not have empathy. At least not any I have met recently. I guess they are all burnt out. I really did not like the neuro that oversaw me while I was in their ER. I had to deal with her before when I had surgery. She does not get MG at all. Even tho she says she sees lots of MGers in clinic. And she would not let me explain my worries of going home and getting bad again.

I am doing ok now. Still having a really hard time every day. If I am not all over the mestinon doses I am in big trouble. Even then I am taking 6-8 a day, more than ever before, and that almost does not seem like enough sometimes. I am doing everything they ask and that I can do to get better and I am not. I cannot live on my couch forever. LOL. It's really not funny, but they do not get that.

Well I am praying that we both feel better soon. No more ER visits. Right?

Well I hope you enjoy every minute you have left with your niece. Lots of hugs, and I like to watch a movie all crowded on the couch with my boys when I can't do anything else but want to do something with them.

Hugs
Carrie

Quote:

Originally Posted by erinhermes

Hey honey! I am so sorry you are having to go through all of this! It is just not right!
When I was in last Saturday, they tested EVERYTHING - my arterial blood gases, 02 levels, EVERYTHING, plus my neuro was THERE to make sure they checked me out.

I don't know why you are getting the runaround. This is NOT rocket science.
I think a lot of drs suffer from high functioning autism - hence the lacl of empathy - my son has it as well, so I am NOT making light of it @ all, but I do truly believe that.

I remember a trip to our lake house b/4 I was dx'ed. I kept telling Mike I was having problems breathing, and we thought about turning around but I really wanted to see my grandma, so we kept on. By the 2nd day I felt much better. I was even able to get my housework done, but couldn't eat anything and was down to ensure - hate that stuff!

You may want to call your dr and ask (for future reference) that they test you for everything while you are @ the hosp.! Also, you need to stay overnight - just in case. They made me stay even though I begged to go home!

I'm praying for you, honey!
Love,
Erin

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