[whirlwind123]

Does anyone else have bad reactions to the medication they give for MG., I was reading this article that signs by not taking medication your condition can progress. I would like to hear from others who do not take any medication and what they do to cope with the disease?

[Joanmarie63]

This post is right up my alley, I don't take the MG medications because I react to badly to them. I have to control my MG with rest and mental awareness, if I know I have to go food shopping, I make it the only big thing I do that day. If I want to go out with my friends, I do nothing the day before and pace myself when I am out {we usually only sit around and gab anyway} I carry a sheet of paper with me explaining my health condition along with Dr info and ins. info. I also have to take Benadryl with anything I take. I also have to carry an epi pen with me just in case. You can live without the MG meds, its just a little more work to control the MG.

[rumpled]

I also take no meds at this time. Mestinon did not work (I am sero-negative). IVIG almost killed me and they decided they did not want to try other meds.
I have to pace myself, only do one thing a day, rest up if I have to do a day out, rest the day after (whether I want to or not).
I don't get to do as much, or help out, like I used to.