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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-18-2009, 05:29 AM
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Senior Member
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Hello everyone! I hope this post finds you all strong and happy!
 Recently I've had really bad problems with my head heating up - sweat will just pour down - I won't be hot anywhere else, but it feels like my head is on fire! I use a bag of ice to cool it down, but wonder what it could be. I've also noticed that since taking my cellcept @ 2000 mgs, my appetite is totally GONE! I have to literally choke down food. I am still @ 60/40 pred, so wonder I'm no longer hungry. Lastly, my ankles have been HUGE recently - the size of my calves.  I called my neuro to try and get some water pills but he wants me to go see my PCP = he doesn't want to "mask" anything and says there is no reason for me to retain 10-15 lbs of water weight in my ankles........Does ANY of this sound familiar to any of you? I know it's silly, but I am afraid of congestive heart failure or something like that. I eat almost no salt, no soda, take my vitamins regularly and get on my EFX when I have the time/energy....... Thanks! Erin 
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Erin . |
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A few questions......
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