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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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What a GREAT idea! I'm going to try that 2morrow!
Big hugs! ERin ![]() ank Quote:
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Erin . |
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#2 | ||
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Grand Magnate
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No offense, guys, but before you put a food product up your vagina, check with your OB/GYN first! Topical solutions to what is clearly a systemic problem are only temporary solutions. And when food sits around in your vagina, it can cause even more problems when it "goes bad." You aren't supposed to eat yogurt after it's been on the counter for an hour or more because it can actually grow bad bacteria. It'll do the same in your vagina and even quicker because of the temperature in there. And how do you know that it all comes out? Drugs that you insert into the vagina are different - they are made not to go "bad" when exposed to higher temps.
Do you guys take probiotics? Do you take omega 3's? There are many other solutions to this situation. I would highly suggest a trip to your internist and/or OB/GYN!!! I normally love good, alternative medicine but this is not really well thought out. Sorry, Martha, but I need to be honest here. Annie |
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#3 | ||
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Junior Member
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Annie,
You make a valid point. I was thinking this is a great idea. I take probiotics religiously, a very expensive one (Floraq-2), omega 3, recommended from my gyno. Also, as I have mentioned, I was on Diflucan for one month, tried boric acid suppositories, baking soda, rephresh. All of these under the supervision of my gyno. I have elminated sugar from my diet. I still suffer from yeast constantly. I am VERY frustrated. Thanks for your input. Dorothy |
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#4 | |||
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Member
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Martha
lol...... Thats awsome !
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Mary . |
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#5 | |||
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Junior Member
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OH girlfriend I can relate. I'm on Pred. and my ankles are disgusting. In fact I can't wear those knee hi nylons without them biting into my skin. HATE IT! HATE IT! HATE IT! I also have the fun moon face, bulge at the back of my neck, and big belly. Also get hot and sweaty easy. Did I mention that I HATE steroids. I feel for you girl. |
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#6 | |||
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Senior Member
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WEll, saw my PCP who gave me water pills for my really, really bad days..you would not BELIVE the difference it makes! I had CHEEKBONES! LOL!
So far I've only taken 1, but it was GREAT! I've also got a bone density test scheduled, and loads of other tests scheduled! ![]() I bought some Spanx for my tummy, but they don't seem to help much, so I'm just switching up a size (now officially a 14 - was a 2-4), but darn(!), the deals on ebay are amazing! My hubby knows I have never, ever shopped like this b/4 and how insecure I am, so he has been great to me! How are you doing? Are you OK? Love, Erin ![]() Quote:
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Erin . |
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#7 | ||
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Member
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Hey baby girl - hot head, huh? LOL
Were you ever able to get someone to check you for the viruses? I had this exact same problem, which cleared up completely within 4 days of starting my high initial does of the anti-viral. It's back in much milder form now that I'm only taking 400 mg per day. My LP results should be back soon, and I'll for sure let you know about the viral aspect - I just feel there is something (infection) hidden on you that is causing your MG to be so serious now. I posted my discussion with the MDA neuro about how this viral thing could affect the MG. As for swollen ankles - yes I had huge ankles and went to the doc about it. The had me buy some compression stockings ($38.00!) which I wore initially for a few days. Now only if I swell. I was so surprised to see how thin my ankles and feet really are!!LOL. It could be lymph passages not circulating as they should, rather than blood. Blood would cause discoloration and I was told to watch for that, but didn't have it - other than my little spider veins which they were'nt real concerned about. Try the stockings, and please get someone to run the blood test for the antibodies to the whole range of viruses they can test for! You are sounding too much like me, and you're too young to have to deal with this, but if you have an active virus they can control with the viral meds, you can get better control of the MG and hopefully get off some of that other crap you're on! Love to you, Erin. ![]() Quote:
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Becky |
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