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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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So i have been having major issues with my back recently. Went to see my neuro to test for neuropathy - negative. He did say that i have a few bulging discs and sciatica, but it shouldn't be causing this much pain.
I trust my neuro completely, but want to be pain free, so i went to see a "pain specialist" today to check out my back. I did tell him - the ps) that i have had several mri's, as well as extensive testing from dr i - well, he (the ps) says that i have extensive nerve damage on my left side and need cortisone shots to help alleviate the pain. Given the amt of pred i'm on, i decided to call dr i and let him know that i have the procedure scheduled for friday - he called back and told me that he does not trust this dr @ all and doesn't want me to have it done. I reiterated that i am in constant pain, to which he responded that he thinks it is ob/gyn related, but was really upset @ the prospect of me getting shots in my back. He told me i am @ the max of pred for now and thinks this guy is a quack....... Now i am in a quandry. I need to be pain free on the days when i feel good enough to get out of bed, i cannot just lie around and take pain meds. Any suggestions? Again, i love my neuro! He truly saved my life! He has been there every step of the way for me, but i really don't want to live a life being in pain. ![]() it seems like since i have been dx'd with mg everything has just gone downhill - my bp, heart, everything. I am scared, but i do know things are going to work out. Any advice would be appreciated! Big hugs! Erin ps i am not yelling - my old comp died and i am still trying to get the new one figured out - i typed this out 3 times and it disappeared into cyberspace.
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Erin . |
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