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Neuro appointment

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Old 08-20-2009, 09:39 AM #11
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Annie
Thats the guy ! I figured if I went to him, where I am diagnosed with MG, he would be able to confirm,& treat, or direct me to who I need to see. I have heard wonderful things about him!
Mary
Mary;
I am so sorry to hear of your problem. I too was recommended to see this same doctor by the MG association director in Florida. She is also a patient of his and says he is the best and only 3 "MG Specialists in Florida". The other 2 are at Jacksonville. Good Luck
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Old 08-20-2009, 11:09 AM #12
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Annie
Thank you for the number, I am calling for an app. today !
Nicky
I have atrophy all over, my biopsy was done in the leg, but you can see it in my hands, arms, shoulders, back, face, & feet. I have to work hard at keeping weight on.
Thank you all for your help,
Mary
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Old 08-20-2009, 11:15 AM #13
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Mary,

I'm really sorry you are having such difficulties. I hope you get more clarity from the second opinion doc. Perhaps I am ignorant, but I was really surprised (not happily) to hear that MG can lead to muscle atrophy. Please let us know when you get your appointment - from what others have written, this guy sounds like a true MG expert.

Sue
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Old 08-21-2009, 10:36 AM #14
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Got my appointment with Dr. Weiss, Sept. 16th !, they are sending my paperwork & release forms for my records. My friend already said she would take me, as it is a 45 min. drive, to much for me these days! Better days are coming I am sure! Happy Day !
Thank you all for your support, & a little nudge ! lol........
Mary
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Old 08-21-2009, 10:46 AM #15
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Mary, that's great...I'm so happy for you! I just know they are going to be able to help you. That was fast too so you don't have long to wait. Take care.

Big Hugs,
Pat
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Old 08-21-2009, 02:08 PM #16
iwasanurse iwasanurse is offline
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Originally Posted by maryec View Post
Got my appointment with Dr. Weiss, Sept. 16th !, they are sending my paperwork & release forms for my records. My friend already said she would take me, as it is a 45 min. drive, to much for me these days! Better days are coming I am sure! Happy Day !
Thank you all for your support, & a little nudge ! lol........
Mary
That's great Mary. The reason I have not gone is that it will be about 9 or 10 hours drive for me. I would love to have his opinion and advice. Good Luck.

Sharon
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Old 08-21-2009, 04:43 PM #17
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Yippee!! This is wonderful news!
Sue
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Old 08-21-2009, 05:25 PM #18
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Unhappy Hi Mary!
Mary - What fabulous news! I am sooooo happy for you!

I did not know that MG can cause muscles to atrophy - scary stuff! How are YOU holding up?

Love,
Erin
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