Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Neuro appointment

Reply
Page 2 of 2 1 2
 
Thread Tools Display Modes
Old 08-20-2009, 09:39 AM #11
iwasanurse iwasanurse is offline
Junior Member
  
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
iwasanurse iwasanurse is offline
Junior Member
 
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
Default
Quote:
Originally Posted by maryec View Post
Annie
Thats the guy ! I figured if I went to him, where I am diagnosed with MG, he would be able to confirm,& treat, or direct me to who I need to see. I have heard wonderful things about him!
Mary
Mary;
I am so sorry to hear of your problem. I too was recommended to see this same doctor by the MG association director in Florida. She is also a patient of his and says he is the best and only 3 "MG Specialists in Florida". The other 2 are at Jacksonville. Good Luck
iwasanurse is offline   Reply With QuoteReply With Quote

advertisement
Old 08-20-2009, 11:09 AM #12
maryec's Avatar
maryec maryec is offline
Member
  
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
maryec maryec is offline
Member
maryec's Avatar
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
Default
Annie
Thank you for the number, I am calling for an app. today !
Nicky
I have atrophy all over, my biopsy was done in the leg, but you can see it in my hands, arms, shoulders, back, face, & feet. I have to work hard at keeping weight on.
Thank you all for your help,
Mary
__________________

Mary
.
maryec is offline   Reply With QuoteReply With Quote
Old 08-20-2009, 11:15 AM #13
suev suev is offline
Member
  
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default
Mary,

I'm really sorry you are having such difficulties. I hope you get more clarity from the second opinion doc. Perhaps I am ignorant, but I was really surprised (not happily) to hear that MG can lead to muscle atrophy. Please let us know when you get your appointment - from what others have written, this guy sounds like a true MG expert.

Sue
suev is offline   Reply With QuoteReply With Quote
Old 08-21-2009, 10:36 AM #14
maryec's Avatar
maryec maryec is offline
Member
  
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
maryec maryec is offline
Member
maryec's Avatar
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
Default
Got my appointment with Dr. Weiss, Sept. 16th !, they are sending my paperwork & release forms for my records. My friend already said she would take me, as it is a 45 min. drive, to much for me these days! Better days are coming I am sure! Happy Day !
Thank you all for your support, & a little nudge ! lol........
Mary
__________________

Mary
.
maryec is offline   Reply With QuoteReply With Quote
Old 08-21-2009, 10:46 AM #15
Pat 110 Pat 110 is offline
Member
  
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default
Mary, that's great...I'm so happy for you! I just know they are going to be able to help you. That was fast too so you don't have long to wait. Take care.

Big Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 08-21-2009, 02:08 PM #16
iwasanurse iwasanurse is offline
Junior Member
  
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
iwasanurse iwasanurse is offline
Junior Member
 
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
Default
Quote:
Originally Posted by maryec View Post
Got my appointment with Dr. Weiss, Sept. 16th !, they are sending my paperwork & release forms for my records. My friend already said she would take me, as it is a 45 min. drive, to much for me these days! Better days are coming I am sure! Happy Day !
Thank you all for your support, & a little nudge ! lol........
Mary
That's great Mary. The reason I have not gone is that it will be about 9 or 10 hours drive for me. I would love to have his opinion and advice. Good Luck.

Sharon
iwasanurse is offline   Reply With QuoteReply With Quote
Old 08-21-2009, 04:43 PM #17
suev suev is offline
Member
  
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default
Yippee!! This is wonderful news!
Sue
suev is offline   Reply With QuoteReply With Quote
Old 08-21-2009, 05:25 PM #18
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Unhappy Hi Mary!
Mary - What fabulous news! I am sooooo happy for you!

I did not know that MG can cause muscles to atrophy - scary stuff! How are YOU holding up?

Love,
Erin
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply
Page 2 of 2 1 2

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuro appointment maryec Myasthenia Gravis 7 05-20-2009 04:19 PM
Neuro Appointment ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 15 05-08-2009 10:33 AM
My neuro appointment and meds slskckjebw Multiple Sclerosis 3 10-04-2008 07:18 PM
Neuro Appointment Today yeahbut Multiple Sclerosis 25 08-05-2008 08:11 PM
Neuro Appointment yeahbut Multiple Sclerosis 26 04-08-2008 11:54 PM


All times are GMT -5. The time now is 12:04 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home