Susan
Nice to meet you!
What a strong person you are, to have gone through all that ! Adjusting our lives is one of the things we all have in common, with this disease, thats for sure !

Take Care,
Mary

Thank you for sharing your story with us.

This is a brilliant site for learning about MG and sharing things about MG.

Im not up to doing too much typing right now!

Love
Rach

Wow desertflower what a journey you have endured! You have such an incredible story. I am recently diagnosed as well....to be honest...just about the same time frame as you. Your mood says "inspired". That's good. I stumbled on this site myself in the last few weeks. I have spent alot of time on this site before I joined. This site has inspired me greatly to hear how others are doing with this disease... One think that I have learned from this group of people is that here is HOPE. Try to stay focused on the future....it is bright. Surround yourself with positive people and stay away from negative people. Have a good Neurologist who understands your situation and can help you manage your symptoms. Stay around and we can support each other here! This site is great!

God Bless

Susan, Welcome. This is a great group of people here who can really give you tons of support.

MG can be brought on by all sorts of things that upset the immune system. Having someone put a hit out on you and viciously attack you would definitely qualify as upsetting. Good grief. I'm glad he's in prison.

If you really live where you say, then maybe you shouldn't put it on the forum. They have computers in prison. Just in case you don't want anyone knowing where you are!

I think that you are amazing for having survived such a horrid experience. You should really lean on that and realize that if a big BLEEP (can't call him what I want to) can't bring you down, then a little disease like MG can't bring you down either.

I hope you have a good neuro. There are other treatments for MG. Resting between activities helps a lot. And stay the heck out of the sun and heat! It makes MG exponentially worse.

I know what it feels like to want to give up. But you never know what good tomorrow will bring. You have to surround yourself with all that's good, with all that you love. Like music, hobbies, etc. Pamper yourself. Stay in touch with people who don't want to hurt you!!! And I would highly recommend, since I have PTSD bad too, that you find a psychologist or psychiatrist that understands it and can give you coping skills. Even a self-defense class would help - which I know from experience.

I think when a disease hits you, that's when faith comes in to play. I often take a deep breath and just say "Okay, I have MG, now what am I going to do next?" It's a stupid Norwegian thing where we never give up or in and just keep going. Heck, it's probably an everyone thing but I come from a farming background where my ancestors had it really rough but kept on moving forward anyway.

Just hang in there. I had this stupid disease my entire life and only found out about it at age 41, 9-1/2 years ago. I'm alive and relatively fine. So can you be!

Annie

Thank you for your concern about my safety Annie - and anyone else who's posts I may not have read yet.

The "evil people", as I call them, hired private detectives and know where I live (it took them about 4 years to find me since I was keeping so many things secret) . I have other solutions in place to keep me and my family safe that I won't mention here. No need to hide my place of residence at this time. Don't worry about me.

I have been slow to post because I have been feeling extra tired these past days but feel better today. I can only guess that this is a common occurance for others, too.

DesertFlower,

Have you checked out the Arizona MGFA website? They're located in Phoenix and have a support group in Tucson.

Here's their link:

http://www.azmgfa.org/

I was just diagnosed last month and my area has a support group which meets every other month. I've talked with a few people over the phone and will attend their next meeting. It might help to find out specific info re local doctors, weather-related "adjustments," etc.

Hang in there.

Susan, I hope you have notified the local authorities about your situation. That would be invaluable, in case the "evil people" decided to make a house call. And a restraining order might be good too. I cannot believe how horrid some people are. Don't they have better things to do? Heck, they probably blame you for what the idiot in prison did.

As if you need that stress. It's like having a constant threat.

Anyway, I'm glad you found the forum. It's amazing.

Annie