Susie,
I also wanted to tell you I have CRPS/RSD in case that might be something you want to check out and see if it is close to your issues.

Hi Jerie, thank you so much for making me feel like I am not alone. It was like nobody knew what I was talking about. I also get the weird hot flushing fever types of flushes. Once my whole body turned as red as a tomatoe at work, thought it was a reaction to a med, but I think it was all the stuff going on with me. I do have raynauds disease also, along with a list an arm long, lol. I am going to a neurology specialist in neuromuscular problems end of this month and this question about the weird cold feeling is on the list.

Jerie, have you ever had the feeling that your scalp is burning, that is the new thing I am having for about two weeks. I should probley go to the neurologist, here but you know in three weeks I will be at the specialists, so do not know what to do. I will certainly let you know what I find out and please I would be so interested if you find out anything too.
Susie