Neuromuscular In memory of Rose Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-27-2014, 02:30 PM #1
twitchyfirefly twitchyfirefly is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
twitchyfirefly twitchyfirefly is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
Default

Quote:
Between your initial symptom of trouble tearing open oatmeal packets and the weakness in thumb extension years later, were your symptoms stable, or did they progress? Did you have any sensory symptoms early on?
Actually, the very first thing I noticed was a slight tremor in my left hand. After that I had the grip weakness in my left hand and also fasciculations that started in my upper left quadrant and have since spread throughout pretty much everywhere except my head. I can't remember which of those came first.

I would not characterize my lack of extension in my thumb as "weakness". Trying to lift my thumb is like trying to levitate the dining room table. I feel like a vital line of communication has been completely severed. Despite that, they have never been able to find a true conduction block in me, which is a classical hallmark of MMN, though not strictly required for diagnosis. And since then I have lost extension three more fingers on my left hand.

As for sensory symptoms, those came later. Right now the tip of my left index finger is numb, some of my thumb is numb (which could be from spending too many months in a splint, trying to treat De Quervains tenosynovitis), and I have that ghost-stocking feeling on my left ankle which has been spreading.

One always has to keep in mind that there is a lot of variability in symptoms. This makes comparisons difficult. Most people with a current MMN diagnosis have at some point been told they have ALS.
__________________
--TwitchyFirefly
twitchyfirefly is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain and weakness in hands - complicated post ewizabeth Multiple Sclerosis 15 06-04-2013 11:44 AM
Pharyngeal Weakness, Mild Pharyngeal Dysphasia, Tongue Fasciculations? SmallTownGirl43 General Health Conditions & Rare Disorders 0 01-12-2013 08:22 PM
weakness going up stairs post laminectomy yorkville1 Spinal Disorders & Back Pain 1 01-29-2009 11:41 AM


All times are GMT -5. The time now is 03:44 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.