Neuromuscular In memory of Rose Marie.

 
 
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Old 10-05-2014, 10:02 PM #3
Maria williams Maria williams is offline
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Join Date: Mar 2013
Location: MI
Posts: 10
10 yr Member
Maria williams Maria williams is offline
Junior Member
 
Join Date: Mar 2013
Location: MI
Posts: 10
10 yr Member
Default Mmn---10-2014

Hello Patricia, Aguilar,
I have MMN, I got mennengitus from IVIG, two times. The first time, after receiving one of two doses. Four months later, a different brand, to be taken over five days, 20% per day and on the 3rd day I got mennengitus again. I now take Hizentra, subconsciously since February, 2011. Started, 3 grams, (15ml). The first week, 7 days, once a day. The next week 2x a day, 2x a week. Over time the doctor increased it and at pressent I'm taken Hizentra, 4 grams, (20 ml) 4x a week, 2x a day. I live in Michigan and Dr. James Teener is with the Universaty of Michigan in Ann Arbor, MI.
I was 65 years old when I noticed my drop foot and it took 9 month of testing and changing doctors. I am now 70 years old and doing well on the Hizentra. Please look into this drug. Hizentra is infused into the fat of the body, it is a slow process, but it works for me, so far. I do the infusionst at home.
My thoughts are with you both.
Maria

Last edited by Maria williams; 10-05-2014 at 10:06 PM. Reason: To add one sentence
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