Neuromuscular In memory of Rose Marie.

 
 
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Old 08-31-2006, 07:38 AM #5
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KTM5665 KTM5665 is offline
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KTM5665 KTM5665 is offline
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Join Date: Aug 2006
Posts: 184
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Im so happy to hear you have found people to listen to you. I've decided listening is 90 percent of the battle! If a doc cannot listen to his patients, your doomed. They may not know everything about a particular disorder, but if they have the power to listen, you have the ball in your court! Toronto, eh? Sounds COLD!
Kids are doing well. Started back to school a month ago...Lauren is in 10th gr, rob is in 3rd and the twins!!!!! They started kindergarden! holy smokes! My house is so quiet! Overall, 3/4 are doing ok health wise. Lauren has developed some problems with her heart...( septal wall thining and a borderline ejection factor...) but we are headed to CCF next month for some more input on that. She's growing up, and we are getting ready for a sweet 16 shindig, first weekend in November! Cant wait!
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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