Hello. Sorry to hear about your troubles. I don't blame you for being frustrated and worried. It is sad is that you are trying to get answers, and it sounds like you are only getting guesses and easy answers from these doctors. I don't know why some doctors go into denial mode when a patient comes in worried about life-disrupting symptoms.

I have had some symptoms like yours. Mine was an immune reaction going on, and that makes a body react in a lot of different ways. Years before that, my ANA titer was 1:1080, very high, and the neurologist that ordered the blood test didn't read the results, I guess. The only reason I found out about it was because a year later, the computer kicked it out to remind the doctor to retest me. He was so nervous when he called me personally to tell me to get retested. The new test was still a little high, 1:360, and he dismissed that one too. A few years later, I was diagnosed with acute lymphadenopathy. A salivary gland biopsy then confirmed that I had Chronic Fatigue Syndrome. I will always have it. This was in 1994, and my new, wiser neurologist also told me that it wasn't time for me to have a diagnosis for my neurological symptoms, and that I was normal for me. This was the kindest thing he could have said, because I had been sick since 1979. I'm still waiting. I hope this isn't true for you, and that you don't go years without a definite diagnosis.

I would like to hear how your tests come out. I do have a question -- what about your relexes? Are they normal? Just curious.

Good Luck,
LaVerne