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Old 09-18-2009, 04:51 PM #1
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Default The Invisible Injury

I'm sorry, but not completely surprised, that some of your friends are being insensitive about your condition. TBI is often an invisible injury: we look fine so people expect us to act that way. Ironically, TBI can be one of the most serious and life-altering injuries a person can suffer. It’s very real and there is no way you can just ignore it and carry on with your premorbid life. I don’t know where you live, but most areas have TBI support groups. Joining one might help combat your sense of isolation.

A clean MRI means nothing. Standard MRIs are not sensitive enough to image all the millions of tiny axons that might be damaged or torn. Even if you have more sophisticated imaging, it can’t tell you how the damage is effecting your daily functioning. It’s good that you’re going to have a neuro-psych. However, please make sure that your psychologist is qualified to administer and score this test. It is usually best to have the testing done by a specialized neuro-psychologist.

Good Luck
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Old 09-18-2009, 10:14 PM #2
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Default

Hi Raul
Hockey has done a good job giving you some basic thoughts. I want to also stress that the MRI being normal only means that there is no structure damage showing. Honestly this is good, it means that they can't see a serious illness in your future so far. But they don't usually see TBI on a MRI.
Unless you are unconscious like in a coma for weeks. And honestly then
you go through even more than many of us here are going through, or have gone through. I know of a couple of young men that were in this situation,
but I can't honestly tell you that their parents were told that the MRI showed anything. Or the EEG showed something wrong, I'm pretty sure it was the opposite. Especially since after one of the boys, the more severe.
Got out of the hospital, his mom was calling me to see if I knew of anyone
that had been through this experience that she could talk to. I am a parent advocate in Indiana, and have a list of parents in the state. Luckily I could
give her a name of a mom for hopefully some support.

But for your situation, I would say that 2 months is a good start. If you are starting to have good days. Start to chart your good days, see if you can give yourself more. Remember to take it easy when you get home. I did physical therapy because of a brain imbalance, and honestly it was one of the best things I did for my TBI also. I would recommend this to you also.
See if your neuro would send you for some physical therapy, ask that you be allowed to go for focusing and things like this.

One of the other things that really has helped me is a membership in a local fitness club, with a pool. I also have fibromyalgia is the water is very helpful.

But going day by day, taking what time I needed from work. And after finding this places TBI-PCS room and starting to post and helping and getting help was the best for not being alone anymore.

Good luck, and know we are here.

Donna
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Old 09-20-2009, 01:21 PM #3
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Unhappy Thank you

Thank you everyone for your very kind remarks. I'm dealing with this one day at a time.
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Old 09-21-2009, 05:01 AM #4
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Default

Hi Rual,

I think one day at a time is the only way to deal with a TBI - but don't deal with it alone.

The injury robs us of motivation and self-awareness. Our lives can spiral out of control because we can't act and/or we may not even recognize all of our problems. TBI patients need help from others: family & friends, support groups, trusted clergypeople, competent professionals, etc... REACH OUT!

Good Luck
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