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#1 | ||
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Junior Member
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Hi guys, I just got diagnosed with RSD/CRPS on Friday by my neurologist/anesthesiologist dr. Had foot surgery June 2008 for neuroma. The thing grew back(stump neuroma) and another one next to it. Nice. Anyhow, pain never went away after surgery....got worse. Podiatrist was injecting me with alcohol sclerosing stuff in June of this year and I had an allergic reaction which turned into huge infection on site of needle injection. From there, it has been downhill. Had to quit job due to severity of pain. Went to two pain specialists and settled with this last guy. I have tried two meds...neurontin and lyrica. Both made me amazingly weird. Now, he gave me balcofen on top of reg. pain meds. So, here I am. I am feeling all kinds of feelings....mad, scared, hopeful that P.T. and lumbar symp. block will work. But basically, I am scared today. I usually am funny..........not lately, however. Thanks for listening. |
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"Thanks for this!" says: |
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#2 | |||
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Elder
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Welcome Ouchymama!
![]() I'm so sorry about the RSD diagnosis and all the pain you've been living with. ![]() There's a forum for RSD that you might be interested in at the following link: http://neurotalk.psychcentral.com/forum21.html There are lots of nice folks there and the other forums as well. I hope you'll make some new friends and get some helpful information too. Take care. ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | (Broken Wings) (10-18-2009) |
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#3 | |||
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Senior Member
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Welcome to NT
So sorry you're having problems with neuroma. It's always a hard thing to accept when you do go through surgery and didn't get the desired result. Double whammy. Took Neurontin and it did have harsh side effects, but helped my symptoms tremendously. There's always a trade. Hope you find some pain relief soon.
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(Broken Wings) . . |
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#4 | |||
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Magnate
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WELCOME TO NT!
You've certainly had a lot of traumtic things happen to you in a short time. It's absolutely no surprise that your emotions are in a jumble. Still, a sense of humour can be a powerful tool against adversity. As your situation stabalizes (and you're doing all the right things to make that happen), your funny side will reassert itself and help you along. For now, try to be kind to yourself. Frankly, I wouldn't be coping half as well as you are. |
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"Thanks for this!" says: | (Broken Wings) (10-19-2009) |
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#5 | |||
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Grand Magnate
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hello and welcome.
i'm sorry you're going thru all this pain. i understand about pain even tho i have a different kind. i don't know anything about RSD but i see Wiz gave you the link. stick around. there's so many great people that are here for you. hope i see more of your posts.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | (Broken Wings) (10-19-2009) |
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#6 | |||
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Magnate
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![]() Hi ouchymama, and welcome to NT! We're so glad you found us! ![]() You will soon discover that this is a great place, with many friendly, caring, and helpful people here.
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Mair . |
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"Thanks for this!" says: | (Broken Wings) (10-19-2009) |
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#7 | ||
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Junior Member
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Thanks, NurseNancy,
I think the link will help, too. Hoping to enjoy this site. I love you quote. Talk to you soon. |
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"Thanks for this!" says: | (Broken Wings) (10-20-2009), Hockey (10-20-2009) |
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#8 | ||
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Junior Member
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Thanks Hockey,
I hope my humor comes back. I miss it......I miss me. But i am goin to try with P.T., and a lumbar symp. block. Hopefully, these things will help. Sounds like a great site here. |
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"Thanks for this!" says: | Hockey (10-20-2009) |
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#9 | ||
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Junior Member
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Hi Broken Wings,
Thanks for the welcome. I hope to find some good help here. I had trouble with neurontin, lyrica and now just got off of baclofen. I am sick of trying pills for nerve pain. Do you have a foot neuroma? Anyhow, thanks a lot. |
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"Thanks for this!" says: | (Broken Wings) (10-20-2009), Hockey (10-20-2009) |
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#10 | |||
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Senior Member
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Quote:
I had a sister-in-law with unexplained foot issues all her life. She finally found a younger surgery who explained a lot to her and said he'd never seen that before nor could he explain the position of bones and tendons and stuff intertwined like hers was. He would try to correct it. He did surgery and done his best to put things they way they should be. But since that surgery, the foot did not work well, at all. curbs were her enemy in the real world. She did mange curbs an uneven paths before surgery. So by her trials I know a foot is valuable, as with all our parts are. God gave them to us for a reason. Hope you find some peace in your day. ![]()
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(Broken Wings) . . |
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"Thanks for this!" says: | Hockey (10-20-2009) |
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