[Rooberri]

Hi all !

I'm new here. My daughter has been diagnoised with Cervical Myofascial Pain. It's been a long road but I'm 95% sure that we are on track.

Many doctors, tests, procedures, brain surgery....it's a been a long 5 years.

I'm here to search for helpful ideas on treatment, and general support for myself as I'm the caregiver. I would also like to maybe help someone that is in our position.

I'm glad to be here.

Sheri (Lauren's mom)

[Hockey]

Welcome to NT, Lauren!

I'm sure that you will find what you seek here. NT is full of wise, caring folks ready to give advice and lend an understanding ear. Thanks too for your willingness to share your experience to help others. That's exactly the sort of open give and take that makes NT a success.

Your daughter is so fortunate to have you. I often think that it is more difficult for our caregivers than it is for we afflicted. You're amazing people.

Cheers

[(Broken Wings)]

Welcome Sheri (Lauren's mom),

I know you must be worried about your little girl. I guess that's a mother's job to worry.

myofascial pain is stubborn but manageable. For my myofascial problems I found PT, myofascial release education and techniques helped me tremendously. I don't like dealing with it, but I know what to do.

Here is a list of things I've tried and gotten satisfactory relief from. muscle relaxers, Advil Liquigels, yoga, aqua therapy, Kinesio tape, LED and infrared treatment pads, TheraCane, Miracle Balls, stretches, water-water-water, vitamins, good nutrition, less stress/relaxation techniques. I also found that keeping my muscles fleece warm helps tremendously-turtlenecks seems to be too tight-I guess a bigger size might work. I seldome get it but I think a good night's sleep would help tremendously. Simple fixes but requires discipline.

I would be happy to share detailed info about my experiences if you want to ask specifically about any of the above.

Jo*mar should be along shortly with some good links for you

[ewizabeth]

Welcome to NeuroTalk Sheri!

This is a great community with lots of awesome people. I hope you'll find lots of good ideas for helping your daughter and yourself too. Take care.

[Darlene]

Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Give Lauren a great big for me. You are in my thoughts and prayers.

Again welcome, looking forward to seeing you around.

Darlene

[Rooberri]

Wow ! thank you for the warm welcomes.

Brokenwing- I have never heard of Kinesio tape- I will be getting on this one shortly. I googled it and this will be an awsome tool to add to my collection.

Thank you everone.

[NurseNancy]

hi sheri and welcome to NT.
there are so many forums here. please feel free to look around and find the perfect one(s) for you.

please let us know how your daughter is doing.

[NeuropathicMum]

Hi!

Im Kate, my 9 year old was diagnosed with small fibre neuropathy two months ago. I must mention that he has had type 1 diabetes for 7 years, which has been very difficult to control.

Which brings us to NT! I am usually very confident and upbeat, however, with a child of this age with this condition, there is NO ONE who understands or can remotely relate to what is happening. Even doctors can't believe that a child of his age had such a rapid onset of symptoms.

He is taking Amitripyline and Lyrica for his pain-he had a reading age of 12+ and is advanced with his schooling but he I am now homeschooling him because he was simply missing too much school. His symptoms are still severe enough that he have 6-7 pain during the day, and then, of course, it is always worse at night.

I think we are both exhausted.

Im so grateful to have stumbled across this valuable little community.

Kate. (Demarco's Mum.)

[NeuropathicMum]

Sorry Sheri!

I was reading your post and wrote my own as a reply to yours!

It's great to meet you, and I'm sure we'll have plenty of opportunities to get to know ea other here!

I certainly understand what you mean when you say "five long years.." As a caregiver, you want to give everything you can to help your child, and it is agonizing when even then, it's not enough to make a bad day better.

Welcome and say hi to Lauren from us,

Kate and Demarco

[(Broken Wings)]

Originally Posted by Rooberri

Wow ! thank you for the warm welcomes.

Brokenwing- I have never heard of Kinesio tape- I will be getting on this one shortly. I googled it and this will be an awsome tool to add to my collection.

Thank you everone.

Yeah, it's good stuff. Here's a link for a positive reason to try it. It is non-restrictive and helps heal

http://images.google.com/imgres?imgu...HpqB8QaFmfmHBw

Did you Google "Images" Here's that link:

http://images.google.com/images?hl=e...Kinesio&aqi=g6

It helped me a lot. I don't use it too much anymore as I'm doing much better and it's not convinent to need someone to put it on you. It did relieve the myofascial pain and allowed me to do more of my own activities of daily living. I understand it to lift the skin up just enough to let the lymphatic fluids flow, to help with healing. The underside of the tape is rippled. No meds involved here. It's mostly recommended to wear for 3 days. I wore it for 3 weeks at a time. I would trim the frayed ends down.

I did post photos of a few of my tapings that my therapist would do. I can tape my arms, neck... (meaning scalene muscles on the sides of my neck-cervical spine tapings didn't want to stay on too good. You may have to do retapings and just work with that area) ...and front areas but I needed hubby or my therapist to apply it on my back. Here's a link for my tapings, just so you can see how I done mine.

http://neurotalk.psychcentral.com/thread104454.html

When we did these recent tapings, it had been awhile since I'd used it. It didn't want to stay on at all. I was so happy as I took it as an indication that I'm a lot better. It used to stick like glue. My therapist would laugh as she jerked it off and would say I needed some fresh tape. She also wanted to order some glow in the dark tape for me. She's funny like that. I did learn to kind'a roll it off when I was removing it, seemed to be better than just pulling it off. You'll understand that if you get into using it.

There are a few tips I'll share with you. You can learn the taping techniques for your baby's needs. I would suggest you look for a therapist to do it the first time. If that's not accessible, you can wing by trial and error.

If you stretch the tape too tight it will cause muscle spasms. When you shower it may peel away from the skin but when you get out, put it back where it goes and kind'a hold it for a few seconds and it will restick most the time. It's best to let it air dry but I used a hair dryer if I was in a hurry. Don't rub excessively with a towel.

I should take a picture of the backside of the tape and how I would cut it to kind'a turn the tape where needed. It is setup in blocks on the back, so you'll count the blocks needed and write it down on the box for future reference and easy cuttings. You cut to form and then apply.

I ordered mine tape at the PT department, in the large box. Lasts longer that way.

If you get the tape, let me know and I'll walk you through it if you can't find an experienced hands-on person to show you what to do. Chiropractors or sports medicine providers may also use it.

It's certainly worth a try. It's not harmful. Can cause minor skin bumps if worn too long or the way I would split the tape sometimes. I would cut the end of the tape like a 1 - 2 inch V shape in some places and the bumps would happen under the tape just before the tape would split/bottom of the "V".

(The bumps were not pimples/pustules but blood filled bumps-so that kind'a let's me know it's causing blood to circulate better in the area-interesting it would be at the bottom of the "V" where I was splitting the tape if you think about it. )

Soorrrry soooooooo looong.