[Rooberri]

Hi all !

I'm new here. My daughter has been diagnoised with Cervical Myofascial Pain. It's been a long road but I'm 95% sure that we are on track.

Many doctors, tests, procedures, brain surgery....it's a been a long 5 years.

I'm here to search for helpful ideas on treatment, and general support for myself as I'm the caregiver. I would also like to maybe help someone that is in our position.

I'm glad to be here.

Sheri (Lauren's mom)

[Hockey]

Welcome to NT, Lauren!

I'm sure that you will find what you seek here. NT is full of wise, caring folks ready to give advice and lend an understanding ear. Thanks too for your willingness to share your experience to help others. That's exactly the sort of open give and take that makes NT a success.

Your daughter is so fortunate to have you. I often think that it is more difficult for our caregivers than it is for we afflicted. You're amazing people.

Cheers

[(Broken Wings)]

Welcome Sheri (Lauren's mom),

I know you must be worried about your little girl. I guess that's a mother's job to worry.

myofascial pain is stubborn but manageable. For my myofascial problems I found PT, myofascial release education and techniques helped me tremendously. I don't like dealing with it, but I know what to do.

Here is a list of things I've tried and gotten satisfactory relief from. muscle relaxers, Advil Liquigels, yoga, aqua therapy, Kinesio tape, LED and infrared treatment pads, TheraCane, Miracle Balls, stretches, water-water-water, vitamins, good nutrition, less stress/relaxation techniques. I also found that keeping my muscles fleece warm helps tremendously-turtlenecks seems to be too tight-I guess a bigger size might work. I seldome get it but I think a good night's sleep would help tremendously. Simple fixes but requires discipline.

I would be happy to share detailed info about my experiences if you want to ask specifically about any of the above.

Jo*mar should be along shortly with some good links for you

[ewizabeth]

Welcome to NeuroTalk Sheri!

This is a great community with lots of awesome people. I hope you'll find lots of good ideas for helping your daughter and yourself too. Take care.

[Darlene]

Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Give Lauren a great big for me. You are in my thoughts and prayers.

Again welcome, looking forward to seeing you around.

Darlene

[Rooberri]

Wow ! thank you for the warm welcomes.

Brokenwing- I have never heard of Kinesio tape- I will be getting on this one shortly. I googled it and this will be an awsome tool to add to my collection.

Thank you everone.

[NeuropathicMum]

Hi!

Im Kate, my 9 year old was diagnosed with small fibre neuropathy two months ago. I must mention that he has had type 1 diabetes for 7 years, which has been very difficult to control.

Which brings us to NT! I am usually very confident and upbeat, however, with a child of this age with this condition, there is NO ONE who understands or can remotely relate to what is happening. Even doctors can't believe that a child of his age had such a rapid onset of symptoms.

He is taking Amitripyline and Lyrica for his pain-he had a reading age of 12+ and is advanced with his schooling but he I am now homeschooling him because he was simply missing too much school. His symptoms are still severe enough that he have 6-7 pain during the day, and then, of course, it is always worse at night.

I think we are both exhausted.

Im so grateful to have stumbled across this valuable little community.

Kate. (Demarco's Mum.)

[NeuropathicMum]

Sorry Sheri!

I was reading your post and wrote my own as a reply to yours!

It's great to meet you, and I'm sure we'll have plenty of opportunities to get to know ea other here!

I certainly understand what you mean when you say "five long years.." As a caregiver, you want to give everything you can to help your child, and it is agonizing when even then, it's not enough to make a bad day better.

Welcome and say hi to Lauren from us,

Kate and Demarco