[Joano]

It's good to find you again. I used to read Brain Talk every night, and when it went down, I checked for a while but eventually gave it up because of other things going on in my life. A couple of weeks ago I ran across something I had printed from Brain Talk and wondered if it was back up now. I recognized some of the names that were still there, but when I checked out NeuroTalk, I knew I had found the new site, and spent the whole night just catching up.

I am still trying to find relief from pn (idiopathic). I was first diagnosed in 1999 shortly after having a transit global amnesia episode (which I think was caused by Lipitor). I also had surgery for Zenker's diverticulosis (which I'm thinking might be related to the Fosamax I used to take for osteoporosis because I know it can affect the esophagus). Anyway, I found strontium, boron, Vit K & D for my bones and in a year improved my bone density 9+ percent. I still take the supplements suggested by Wings and B-12 by Rose. I have become very leary of the side effects caused by most drugs. I take benfotiamine 4times/da which helps the burning significantly. I do not take any drugs for pn.

For almost 3 months I have been going 3 times/week for VST Myodynamic Therapy developed by NASA which I read about in a senior publication which came to my house. Medicare covers this therapy which takes between 40 and 60 sessions. I am now feeling some sharp stabbing pains in my feet which they feel may be my nerves reconnecting. The people who seem to benefit the most are those whose neuropathy started with chemo. People with back problems causing their pn do not achieve as much relief; however, their literature says average pain reduction is 83% and overall improvement 86%. I do not get as tired as I used to before starting the treatment. A podiatrist owns several Scientific Therapy offices in Texas.

I was interested in the citrulline/arginine protocol Mrs. D. is trying and wondered what dosage she recommends. My feet become ice cold in a very short time when I go to bed. Then it's hard to go to sleep. I checked Dr. Ignarro's web site, but the dosage seems high-- I certainly could be wrong.

I hope I will be able to manage this new website. It seems quite complicated for this old senior citizen! I'm not sure what a "tag" is . . . so much to learn!