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Grand Magnate
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Welcome to Neuro Talk!!!
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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"Thanks for this!" says: | Hockey (12-05-2009) |
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Magnate
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--and I agree with your idea to go to see the neurology department at Massachusetts General, which is an excellent one, well-versed in peripheral neuropathy.
Given your symptoms, especially the autonomic ones, this sounds like a post-infectious autoimmune small-fiber neuropathy, possibly due to molecular mimicry processes. Hockey's given you the link to the neuropathy forum here and you can definitely find info about that kind of situation there; I've written about it in anumber of posts and so have others. One can analogize it as a sort of small-fiber Guillain-Barre syndrome, and like that syndrome often the situation is worst for the months immediately after the cascade, and then there is some recovery, but the recovery is often partial and patchy. Nerve especially heal very slowly, and it may be years before you know how much recovery you may get. |
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"Thanks for this!" says: | Hockey (12-05-2009) |
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