[JFlynn]

Hi everyone,

I am the father of an 8 yr old boy (Shawn) who was recently diagnosed with Mito Complex 4. We have been trying to figure this out for 8 years. amazing it took this long to get tested for this. We have always been told that he just has low muscle tone. He has been taking the Co-enzyme Q10 (we found some stores with flavored gummy versions) and next month we will be visiting Childrens Hospital Boston to see about the Mito cocktail.

I hope to get info and feedback from others that might have some insight or info to share on complex 4.

JFlynn

[ewizabeth]

Welcome to NeuroTalk JFlynn and Shawn!!

I'm so glad you found us! There are lots of nice folks here as you'll see. I don't know anything about that condition but chances are there are others here who do.

I hope the treatment will help you to feel better Shawn!

[MelodyL]

Originally Posted by JFlynn

Hi everyone,

I am the father of an 8 yr old boy (Shawn) who was recently diagnosed with Mito Complex 4. We have been trying to figure this out for 8 years. amazing it took this long to get tested for this. We have always been told that he just has low muscle tone. He has been taking the Co-enzyme Q10 (we found some stores with flavored gummy versions) and next month we will be visiting Childrens Hospital Boston to see about the Mito cocktail.

I hope to get info and feedback from others that might have some insight or info to share on complex 4.

JFlynn

Well, hello to you and a big hello to Shawn.

I am now going to look up Mito Complex 4 (I have never heard of this).

Just wanted to welcome you to our little corner of the world.

Hope you find some answers and meet some friendly folk.

Take care,

Melody

[azoyizes]

hi jflynn and shawn, and welcome to neurotalk. i'm so glad you found us.

this is a super place with lots of friendly, caring, and helpful people.

take a look around, jump in anywhere you want. ask a question, and i'm sure that someone will come along either with an answer or where to find one.

To get you started, here is a link to general health and rare disorders:

http://neurotalk.psychcentral.com/forum2.html

i wish you and shawn the best.