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Old 05-22-2008, 11:30 AM #1
janash janash is offline
New Member
 
Join Date: May 2008
Posts: 2
15 yr Member
janash janash is offline
New Member
 
Join Date: May 2008
Posts: 2
15 yr Member
Chat mental retardation, CP, cortical blindness,seizures

Hi to all!!!

I have an 18 y o son who is severly handicapped. We live everyday with all the above mentioned (title). He has been on a long list of seizure meds and we are now investigating the VNS for seizure control. Would be greatly interested in connecting with any and all who have valid info and or personal knowledge and experience with VNS. Also, I would be interested in comparing notes on any and all the above and below mentioned disorders that, at least for us, fall under the umbrella for the diagnosis of cerebral dysgenesis.

My sons conditions are severe seizures, CP, cortical visual impairment (CVI,CVD). He is non-abulatory, and non-verbal. He also has a Mickey button and thus receives all nutrition and meds via the tube.
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