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Old 02-26-2010, 08:19 PM #1
elmodo elmodo is offline
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Join Date: Feb 2010
Posts: 5
15 yr Member
elmodo elmodo is offline
New Member
 
Join Date: Feb 2010
Posts: 5
15 yr Member
Default RSD and Topomax

Hi everyone: My daughter who is 30 was diagnosed with RSd during pregnancy. We have been fighting it ever since without much success. I basically spend my life online when I have time and with her and the baby to help out after work and also taking her for nerve blocks and already a ketamine infusions (all not very successful). Then, I thought, I suffered the most horrendous migraines all my life and it seems Topomax helps me deal with them. So, I typed in Topomax and RSD and wouldn't you know, some people are using it. What I don't understand is why I seem to have to do all the research. Her RSD specialist never seems to give any suggestions except for nerve blocks and ketamine infusions or wanting to put in a spinal chord stimulator. I feel really frustrated because I feel my daughter is not at the point where she needs to have a stimulator implanted yet. Today, I decided to join the forum which I have been reading for a few months (always very informative, thank you to all of you). She is taking cymbalta and lyrica and doesn't seem to get any relief from it. I am afraid the RSD is moving around in her body, kind of jumping around (is that possible?). It started in her right foot, then jumped in the left, got better, went into the left arm, got better, then back in the right foot, and now possibly in her right arm. OK, I don't want to overwhelm everyone with my story. Just wanted to know if I should look into topomax to help her.
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