[Merrilee]

Hello,

I have migraines and chronic daily headache, currently under control with topamax and a low carb diet.

DH seems to be gluten intolerant and is currently undergoing testing. Our experiments with GF eating have done wonders for my headaches. Perhaps we both need to be gluten free....

[weegot5kiz]

Hello Merilee and welcome to Neuro Talk, sorry about your troubles below are a couple links to two specific forums one for headaches and the other is for gluten, feel free to post questions there and answer too. you will find NT is filled with a lot of helpful and wonderful people, again welcome to NT



http://neurotalk.psychcentral.com/forum13.html gluten forum


http://neurotalk.psychcentral.com/forum32.html headache forum

[Bannet]

Hi Merrilee and Welcome to NeuroTalk.

I see Frank already gave you two great links to start with. I'm glad you found us.

[FranksAngel]

welcome to NeuroTalk ... there are lots of friendly and supportive people here ... check out the two links given already and also any of the other sites ... join in where you feel comfortable ... i hope to see you around ... again .. welcome to NT

[Jaspar]

Originally Posted by Merrilee

Hello,

I have migraines and chronic daily headache, currently under control with topamax and a low carb diet.

DH seems to be gluten intolerant and is currently undergoing testing. Our experiments with GF eating have done wonders for my headaches. Perhaps we both need to be gluten free....

It could very well be all about gluten. Maybe dairy also. But sometimes it is even more complex with gluten being just a part of a bigger puzzle. Nevertheless, if gluten is a problem, it must be adressed.

[Kitty]

Hi Merrilee and welcome to NeuroTalk!

[ali12]

Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!!

I'm sorry to hear about everything that you are going through . I also suffer from Migraines although mine are a result of a chronic pain condition (RSD).

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can!!

Take care and I look forward to seeing you around the forum and in the Chat Rooms soon!!

Love, Alison

[Lz_erk]

I would say, surprisingly often.

A gluten-free diet resolved conditions I thought would be forever undiagnosed and untreated, but this was after a long history of abdominal pain and a recent severe outbreak of dermatitis herpetiformis. My mother took up the diet too, and experienced significant heel spur relief -- her symptoms seemed totally atypical to me, but I can't argue with results. (Later investigations turned up a possible gluten/celiac-related calcium problem.)

It's relatively *common* for people who do not/may not have celiac disease to report health improvements from adopting a family member's new gluten-free diet (sorry, lost the source and short on time).

If you don't already have this link, please do. I think it's the most important dietary and celiac disease-related tool at my disposal.

[Merrilee]

Thanks everyone, for a very warm welcome.

The more I read about gluten, the more amazed I get. It seems to be linked to just about everything. It seems as if everyone could potentially benefit from a GF trial.

[Jaspar]

Originally Posted by Lz_erk

I would say, surprisingly often.

A gluten-free diet resolved conditions I thought would be forever undiagnosed and untreated, ...
It's relatively *common* for people who do not/may not have celiac disease to report health improvements from adopting a family member's new gluten-free diet (sorry, lost the source and short on time).

Lz Erk. Amazing how much you have in common with our family member with the same issues. I saw in another post you have sleep disorder, this gluten problem, and hypothalamic dysfunction.

Just like you said, After finding gluten issues in our family, someone else in the family went gluten-free finding it was the source of unexplained hives. Both gluten and cow dairy did a number on one member, in a major way- even minute amounts of cow dairy.

It must affect different people differently - it can cause diarrhea... or constipation... abdominal pain... or not... brain symptoms, or not... look like bipolar, MS, cause depression, or just cause hives and make a person sleep or cause insomnia, or trigger other autoimmune problems, make them need more tryptophan, or even cause an autoimmune osteoporosis.

I like the Gluten File at http://jccglutenfree.googlepages.com/ which has a lot on this topic (great place to start research). And www.ItsNotMental.com talks about how it affected a person's family members (with research links).