Hii
I am a mother who is watching her 40-year-old son suffer from a spinal leak after ssurgery for "spinal stinosis." He seems like he has just exchanged one type of pain for another. Can't eat or drink , only a very little. has had projectile vomiting and is really sensitive to slightest light or sound. Had a blood patch three days ago. and had some relief at first but is slowly getting back to the same severe headache, plus severe leg pain that is supposed to be from "nerve damage." A few days after rsurgery, we took him to hospital emergency room where we were told "we can't do anything for him that you cant do at home. Why are they so afraid to give him pain relief meds? Seems to me any possible addiction wouldn't be likely when a person is suffering so much??Anything that will help that we as family can do for him??
Jackie

How long ago was his surgery that caused the spinal leak?
I'm shocked that his Dr isn't helping him get thru this horribly painful time!

From what little I was told of spinal leaks when I had a Lumbar Surgery procedure was that they ARE treatable. Lying flat and consuming caffeine was mentioned.....? But don't do that unless a medical professional confirms it.

They made it sound to me that, indeed it is very painful, but it WILL pass.
The only reason I was concerned and wanting this info is because it was possible to have been a side-effect of the procedure I had. I didn't fall victim tho.

Won't his Dr give him something for the pain?!

You'll get more responses to your questions.....i just wanted to say how sorry I am you are watching your son deal with this.....

Truly Caring
Rae

Here's a direct link to the CSF Leak forum

http://neurotalk.psychcentral.com/fo...aysprune=&f=78

There is also a forum for Spinal Disorders in the main menu.

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene

hello jackie

blood patches do not always work it is real important to lay flat and no exertion for a long time after the patch if you are in the USA I can recommend a doctors / surgeons who are specialists in this field

please see link to post http://neurotalk.psychcentral.com/thread59605.html

orthostatic headaches due to csf leaks can be helped by laying flat, dose this help ? fluid intake is important to try to keep it to normal levels

your surgeon should have used duraseal or similar http://www.durasealinfo.com/imageSer...pplication/pdf

above all I would recommend talking with the surgeon asap I have had a intermittent skull leak for over two years once a fistula has formed in my opinion they are harder to fix
best wishes