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03-10-2010, 11:44 AM
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New to this site. At my wits end with this Fibro. I have tried Lyrica, gained 24lbs in 6weeks. Dr said he would kill me at that rate. Tried Triliptal, caused severe shortness of breath, he took me off that too. My latest failure was Zonegran. At first it seemed to be working. Six weeks in I had lost 20lbs and the pain was pretty much bearable. Then came the side effects. Numbness in my face, bad taste, bloody nose, and sores in my mouth. Needless to say, I am no longer taking Zonegran either. Right now I am not on anything and the pain is comming back with a vengence. Does anyone have any suggestions? Im about to go off the deep end.
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| "Thanks for this!" says: | (Broken Wings) (03-12-2010) |
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03-10-2010, 03:22 PM
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Young Senior Elder Member
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Hi Floridanana and welcome to Neuro Talk. Here is the link to our Fibromyalgia Forum...http://neurotalk.psychcentral.com/forum12.html
You'll find good information and support there. I'm glad you've joined. 
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| "Thanks for this!" says: | (Broken Wings) (03-12-2010), floridanana (03-16-2010) |
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03-10-2010, 03:54 PM
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Elder
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Just wanted to say hi and welcome you to the community...my best friend has fibro, and has some of those issues...hope you find some answers!
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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| "Thanks for this!" says: | (Broken Wings) (03-12-2010), floridanana (03-16-2010) |
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03-10-2010, 06:22 PM
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Grand Magnate
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Just wanted to say welcome to Neuro Talk! I too know what your saying with fibro....I too am at my wits end. What helps one day doesn't work for the next. For me it is a guessing game....Hope can find answers and great friends as I have...
 
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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| "Thanks for this!" says: | (Broken Wings) (03-12-2010), floridanana (03-11-2010) |
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03-11-2010, 02:46 AM
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Legendary
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 Again welcome, looking forward to seeing you around. Darlene
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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| "Thanks for this!" says: | floridanana (03-16-2010) |
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03-12-2010, 10:43 AM
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Welcome to NT
Fibro is miserable. It's hard to get control of. There's lots of people here who you can share with. They may be able to give you some good pointers to lessen your suffering. We're here for you.
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(Broken Wings) . . |
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| "Thanks for this!" says: | floridanana (03-16-2010) |
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03-12-2010, 11:29 AM
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Magnate
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Welcome. I too suffer from fibro....hugs to you as its not an easy journey.
Lots of great folks here so definately check it all out! Good luck!
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sox . . |
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03-14-2010, 09:24 AM
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Thank you everyone who replied. It's nice to know i'm not alone. Some days it's hard to cope with the constant pain and depression that come with Fibro. I miss the days when I could chase my grand babies around and just have a normal day. I have read alot of the helpful suggestions mentioned in the links provided. I am going to my neuro next week and I will bring some of the treatments to his attention. Hopefully between all we can come up with something that will work for me. (a full nights sleep without pain would be nice to begin with).
Thanx Again Darlene AKA: floridanana
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03-14-2010, 09:59 AM
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Grand Magnate
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Welcome, floridanana! Sorry for your fibro, but glad you found us.
I take LDN (low dose naltrexone) for my Multiple Sclerosis. Fibromyalgia was among the maladies mentioned that it could help. Best wishes to you in finding something that will help.
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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| "Thanks for this!" says: | floridanana (03-15-2010), Kitty (03-14-2010) |
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03-25-2010, 01:07 PM
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New Member
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Well I'm back from the Neuro, he says we have to start all over again since I am allergic to the Zonegran. He has started me on a low dose of Topamax. I would love to hear from other folks who have taken, or are taking this drug. He also said Cortisone shots in my spine might help. I am not keen about this idea. (i'm not one for needles). Not only do I suffer from Fibro, but I have a blood clotting disorder called Factor V Leiden. I have blood drawn at least once a month and I dont know how this might affect my clotting problems. I have had 2 Dvt's and 2 Pe's, and I dont want to end up with anymore. I have heard this is a tempoary fix for the pain. I would like some feed back on this procedure also. Thanks Again; Darlene AKA floridanana.
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| "Thanks for this!" says: | Darlene (03-26-2010), Twinkletoes (03-25-2010) |
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floridanana
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