[Pravin]

My name is Anna Maria, i am from the Faroe Islands in the north Atlantic ocean. I am not good at writing english, but i hope you will understand what i am writing.
The reason i join here is of my son. He is adopted from India and is now 11 years old. He is premature so for some years we and the doctors believed that was his challenge. But after years to find out what caused all his mental and physical problems, he was diagnosed with cerebellum ataxia. In his case it means that he looses his abilities. His cerebellum is shrinking, now with about 40%. There is no cure for him, the doctors say. His illness is maybe something genetic.
I lost my husband last year to cancer, so it has been a hard time for my little family. I also have an adopted girl 16 years old.
In this forum i hope to find someone in the same situation, with a child with the same disorder as my son. And to try to find out, if there is something to do, so my sons illness can be delayed or stopped. I know what he has lost he want get back.

[Darlene]

Anna Maria,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[jagjones]

Dear madam,

I do not know how to express my deepest sympathies, empathy, and concerns for you and your children. I personally do not know what is like to have a child with such a condition as the one that your son has, however I have felt the lost of my first cousin to an illness that caused the very opposite condition, making her brain swell, and in my own small experience in comparison to yours, i want to encourage you to enjoy every day of life that you and your children have to be together in and to likewise never give up hope, no matter what the outcome. You never know, the cure may be found as an response to your own efforts to seek answers. Perhaps you can reach out to world renowned pediatric neurosurgeons globally and maybe just maybe, one may wish to sponsor your baby.

I know my suggestion isn't much, but I hope that perhaps, I have helped you in some small way.

Many blessings unto you and your children.

-Crystal