FAQ/Help |
Calendar |
Search |
Today's Posts |
|
New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
Reply |
|
Thread Tools | Display Modes |
06-27-2012, 11:48 AM | #1 | ||
|
|||
New Member
|
Hi,
I have been suffering with neuropathy for about 7 months. Started off in my feet and his moved into my calves as well. I have seen a neurologist. I had an EMG done. There is some nerve damage noted, with a small amount of muscle too. I have cold sensations starting at my ankles into my feet. The doctor does not seem too concerned. He said that my next step would be a spinal tap. He thinks I could have possibly had some type of infection years ago and since I have been under tremendous stress (my mom passed away 9 months ago) it could have triggered something. My blood work is perfect (thyroid, diabetes). I am beginning to wonder if I have some type of food allergy. I am an avid Splenda user (I use alot). I stopped for about two weeks, but got back on it. Just would love someones else's opinion on what this could possibly be. I forgot to mention that I have been on a series of B12 injections for about three months. Thanks for any input ) |
||
Reply With Quote |
06-27-2012, 12:30 PM | #2 | |||
|
||||
Wisest Elder Ever
|
Welcome to NeuroTalk:
I invite you to visit our PN forum, and do some reading. The B12 thread: http://neurotalk.psychcentral.com/thread85103.html And our Subforum with many informational posts: http://neurotalk.psychcentral.com/forum119.html And the regular forum for conversation: http://neurotalk.psychcentral.com/forum20.html There are many possibilities for you, but we need to know more about you in order to set you on a path, where you may be able to heal from this. No guarantees, but some people can arrest or regress PN depending on your circumstances.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
"Thanks for this!" says: | Kitt (06-27-2012) |
06-28-2012, 02:13 AM | #3 | |||
|
||||
Legendary
|
stacisongy1226,
Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. Darlene
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
|
|||
Reply With Quote |
06-28-2012, 08:30 AM | #4 | ||
|
|||
New Member
|
I have neuropathy in my feet and so does my brother. Our neuropathy is a side effect of medication. We use benefotamine which is a B1. You can google it for the address if you are interested. I do not sell this product or have any affiliation with the company nor am I a doctor. But I can tell you that it works for us.
|
||
Reply With Quote |
06-28-2012, 07:08 PM | #5 | ||
|
|||
Elder
|
Welcome to Neuro Talk. You found a good site, and there are lots of compassionate people here as well. I also have PN in my left foot and calf. Maybe RSD I really don't know yet. My doctor put me on the same B12 as you, and told me that is one of the best things I can do. She is a physiosist, and did give me some other suppliments too. I am sorry you suffer with this. There are medications that help. I don't know if I would have a spinal tap for this or not. It would take a lot of convincing for me anyway. I don't go quietly to invasive proceedures very well. Keep posting to the PN forum with any of your concerns. Ginnie
|
||
Reply With Quote |
"Thanks for this!" says: | ger715 (06-28-2012) |
06-28-2012, 10:31 PM | #6 | |||
|
||||
Junior Member
|
hi i also have neuropathy and rls. when my blood work came back i had a vit D level of 9 no kidding.any way one more week of the 50000u of vit D2. I tried B12 before my blood work came back and it kicked my RLS into high gear. I was so bad i had it all day which i had not had in a few years, went off b12 still have days of all day RLS. Will be retested on the vit D in 2 weeks and will continue wit 2000 u per day. Maybe it wont be so low this time.
Brenda
__________________
. |
|||
Reply With Quote |
06-29-2012, 10:22 AM | #7 | ||
|
|||
Magnate
|
Quote:
I have been taking the benefotiamine, 100mg's about 3 to 4 a day, along with Methylcobalamin B12 and stabilized R- Lipoic Acid for 5 or 6 months. At first things seemed better; but now am really having a lot of pain; especially burning of feet and ankles. Has the Benfotiamine improved your burning/PN?? Thanks, Gerry |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
paraneoplastic/SF-non lenght dependent neuropathy/demyelinating neuropathy | Peripheral Neuropathy | |||
neuropathy | Medications & Treatments | |||
is this neuropathy? | Peripheral Neuropathy | |||
Small Fiber Neuropathy (or Length-Dependent Neuropathy) | PN Tips, Resources, Supplements & Other Treatments | |||
TOS and Neuropathy | Thoracic Outlet Syndrome |