Hi,
I have been suffering with neuropathy for about 7 months. Started off in my feet and his moved into my calves as well. I have seen a neurologist. I had an EMG done. There is some nerve damage noted, with a small amount of muscle too. I have cold sensations starting at my ankles into my feet. The doctor does not seem too concerned. He said that my next step would be a spinal tap. He thinks I could have possibly had some type of infection years ago and since I have been under tremendous stress (my mom passed away 9 months ago) it could have triggered something. My blood work is perfect (thyroid, diabetes). I am beginning to wonder if I have some type of food allergy. I am an avid Splenda user (I use alot). I stopped for about two weeks, but got back on it. Just would love someones else's opinion on what this could possibly be. I forgot to mention that I have been on a series of B12 injections for about three months. Thanks for any input )

Welcome to NeuroTalk:

I invite you to visit our PN forum, and do some reading.

The B12 thread:
http://neurotalk.psychcentral.com/thread85103.html

And our Subforum with many informational posts:
http://neurotalk.psychcentral.com/forum119.html

And the regular forum for conversation:
http://neurotalk.psychcentral.com/forum20.html

There are many possibilities for you, but we need to know more
about you in order to set you on a path, where you may be
able to heal from this. No guarantees, but some people can arrest or regress PN depending on your circumstances.

stacisongy1226,

Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I have neuropathy in my feet and so does my brother. Our neuropathy is a side effect of medication. We use benefotamine which is a B1. You can google it for the address if you are interested. I do not sell this product or have any affiliation with the company nor am I a doctor. But I can tell you that it works for us.

Welcome to Neuro Talk. You found a good site, and there are lots of compassionate people here as well. I also have PN in my left foot and calf. Maybe RSD I really don't know yet. My doctor put me on the same B12 as you, and told me that is one of the best things I can do. She is a physiosist, and did give me some other suppliments too. I am sorry you suffer with this. There are medications that help. I don't know if I would have a spinal tap for this or not. It would take a lot of convincing for me anyway. I don't go quietly to invasive proceedures very well. Keep posting to the PN forum with any of your concerns. Ginnie

hi i also have neuropathy and rls. when my blood work came back i had a vit D level of 9 no kidding.any way one more week of the 50000u of vit D2. I tried B12 before my blood work came back and it kicked my RLS into high gear. I was so bad i had it all day which i had not had in a few years, went off b12 still have days of all day RLS. Will be retested on the vit D in 2 weeks and will continue wit 2000 u per day. Maybe it wont be so low this time.
Brenda

Do you take supplements other than benefotiamine? How much do you take a day?

I have been taking the benefotiamine, 100mg's about 3 to 4 a day, along with Methylcobalamin B12 and stabilized R- Lipoic Acid for 5 or 6 months. At first things seemed better; but now am really having a lot of pain; especially burning of feet and ankles.

Has the Benfotiamine improved your burning/PN??

Thanks,

Gerry