Looking forward to finding other caregivers for chronic pain sufferers. I love my husband with all my heart and the degeneration of his health is breaking my heart. I ride a constant roller coaster not knowing how he is handling input from minute to minute. Most days he's not out of bed for more than a couple of hours and his mood swings wildly. I know that drugs, psychological factors, physical factors and all kinds of triggers combine to determine what is going on for him. I'm losing my mind trying to keep things on an even keel. It's just a crazy life we lead. I have a 10 year old, an adorable and kind boy, who is afraid to wake up anyone because his dad can have a horrible startle reflex with the lightest touch which sends him into body pain for sometimes days. Some nights my poor husband can't sleep with a sheet on him because of pain. This is just an insane situation. I'm working, but find that it takes every ounce of my energy just to get up in the mornings. How will we ever make it? I'm trying to keep a happy face, but I'm so worn out. How do you all keep going?

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome to NT, FarmerJane.

So sorry for what you and your husband & son are going through right now. I don't blame you for not having the energy to get up in the mornings--sounds like your husband must depend on you for everything.

I don't have any sage advice, not having been through anything like that myself (other than taking care of Dad in his final weeks of life). I will remember you in my prayers and hope you find some comfort. Is there someone who can give you some help or a break?

You have found a wonderful place of caring people on so many levels of pain and support.
Please make yourself at home here, as there are forums to help with so many issues. Here is the direct link to the Caregivers Forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=56

There are also forums here that may help you in dealing with your husband's particular pain condition. Just ask if you need help in finding your way around.

God Bless
Rae

Just wanted to add my welcome to the others. You came to a good place, and you'll find lots of support here.