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Old 02-28-2007, 01:24 PM #1
rose rose is offline
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rose rose is offline
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Welcome. If you don't already have copies of your lab results, I hope you will get them as soon as possible. It's amazing how frequently results are misrepresented or not interpreted adequately.

One of the things you can cover safely is B12 deficiency. Malabsorption can happen to anyone, and the variety of neurological problems that can develop as a result is amazing. It is very often undiagnosed or diagnosed so late that serious damage has been incurred unnecessarily.

http://roseannster.googlepages.com/home

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 02-28-2007, 01:56 PM #2
muckraker muckraker is offline
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Thanks for your responses so far.
All of my blood tests are normal.
My B12 is normal.
All lab tests and diagnostic tests are normal.
That's the problem. Everything but the two EMGs have been normal, thus my concern that I have run out of illnesses other than ALS,
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Old 02-28-2007, 04:26 PM #3
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default Ah, but not all doctors--

--even neurologists, are aware of the panopoly of tests that can be brought to bear on neurological issues.

You could have an autoimmune neuropathy, for example. Have they tested for any of the numerous antibodies to peripheral nerve?

Take a look at the spreadsheets at www.lizajane.org. A number of us here worked on these (though Liza Jane deserves the lion's share of the credit) to make them as comprehensive as possible as regards testing for neurological conditions. Many have found these very useful to track their tests and to use as a gentle prod to doctors to get them thinking in directions they otherwise might not.
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Old 02-28-2007, 06:08 PM #4
rose rose is offline
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Hearing "normal" doesn't mean a thing.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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