[d. scarlet]

hello all. I have just been diagnosed with erythomyalgia. tHis all began about 6 months ago. the femoral arery in my left leg has shut off and am going on collateral blood flow. i have had several surgeries but always within 6 moths the artery occludes again. NOw my foot will turn beet red and feels like a volcano ready to erupt. Sometimes only a certain part of the foot hurts like now the left side of the left foot behind the little toe. THe pain is excrutiating. my pain doctor prescribed a topical cream with gabapentin in it. I also take 30mg. ms contin. All this has little to no effect. i understand only 1 in 100,000 are affected by this awful condition. does anone out there have this too? do you have any advice for the pain?

[azoyizes]

Hi, and welcome to NT! This is such a great place with many caring, friendly, and helpful people.

We're so glad you found us!

I am going to post links to different forums where you may get answers to your questions:

General Health and Rare Disorders
http://neurotalk.psychcentral.com/forum2.html

Chronic Pain
http://neurotalk.psychcentral.com/forum10.html

Peripheral Neuropathy
http://neurotalk.psychcentral.com/forum20.html

[MelodyL]

Originally Posted by d. scarlet

hello all. I have just been diagnosed with erythomyalgia. tHis all began about 6 months ago. the femoral arery in my left leg has shut off and am going on collateral blood flow. i have had several surgeries but always within 6 moths the artery occludes again. NOw my foot will turn beet red and feels like a volcano ready to erupt. Sometimes only a certain part of the foot hurts like now the left side of the left foot behind the little toe. THe pain is excrutiating. my pain doctor prescribed a topical cream with gabapentin in it. I also take 30mg. ms contin. All this has little to no effect. i understand only 1 in 100,000 are affected by this awful condition. does anone out there have this too? do you have any advice for the pain?

Hi Hon.

Just wanted to say welcome, and I am so so sorry that you have all this pain. My husband has had neuropathy for 20 years and he knows pain, believe me. I hope they can find someway to give you some measure of pain relief.

Take care,
Melody

[tamiloo]

Hey, just stopping in to say hello and say Welcome
Feel free to cruise around in any forum....we have some of the best folks just waiting to help. I look forward to getting to know.