[Prof de Rien]

Hello all,

I've dropped by "here" many times over the years but never registered or got involved -- not for any particular reason except, perhaps, laziness. I confess, too, that I've burnt out in support groups in the past. But being older {sigh} and wiser {questionably}, I don't think that's an issue anymore.

My list of "haves": CRPS in all limbs and the bottom half of my face, lupus, avascular necrosis, osteomyelitis, adrenal insufficiency, and blah blah blah.

I began subanesthetic ketamine infusions about a month ago but have had no luck with them as yet. I begin the second round of them on Monday and am trying to remain hopeful.

In my working life, I was a French prof -- at university and high school levels. I miss teaching a lot and feel adrift (and guilty) since I had to go on disability, even after all this time.

I spend most of my time turning ADLs into art forms, keeping house, cooking, doing all the domestic stuff that I never valued before. I live with my partner of 20 years and with our current level of three cats (including a young kitten that is pure hell for CRPS). I blog -- it's called "elle est belle la seine la seine elle est belle" published by Blogger/blogspot -- come visit! Like many of you, I'm sure, life has become almost a constant battle against pain.

That's me in a nutshell. So to speak!

[Abbie]

Hello Prof de Rien
and
WELCOME to Neurotalk!!

Here is the link to our Reflex Sympathetic Dystrophy (RSD/CRPS) Forum:
http://neurotalk.psychcentral.com/forum21.html

Please feel free to pull up a chair and stay a while!!
The RSD forum is quite a busy place full of very caring, kind, and understanding people who share a wealth of knowledge and offer a shoulder to lean on without hesitation!!

I look forward to seeing you around the boards.

Abbie

[dovecottage]

Originally Posted by Prof de Rien

Hello all,

I've dropped by "here" many times over the years but never registered or got involved -- not for any particular reason except, perhaps, laziness. I confess, too, that I've burnt out in support groups in the past. But being older {sigh} and wiser {questionably}, I don't think that's an issue anymore.

My list of "haves": CRPS in all limbs and the bottom half of my face, lupus, avascular necrosis, osteomyelitis, adrenal insufficiency, and blah blah blah.

I began subanesthetic ketamine infusions about a month ago but have had no luck with them as yet. I begin the second round of them on Monday and am trying to remain hopeful.

In my working life, I was a French prof -- at university and high school levels. I miss teaching a lot and feel adrift (and guilty) since I had to go on disability, even after all this time.

I spend most of my time turning ADLs into art forms, keeping house, cooking, doing all the domestic stuff that I never valued before. I live with my partner of 20 years and with our current level of three cats (including a young kitten that is pure hell for CRPS). I blog -- it's called "elle est belle la seine la seine elle est belle" published by Blogger/blogspot -- come visit! Like many of you, I'm sure, life has become almost a constant battle against pain.

That's me in a nutshell. So to speak!

Welcome. Living in pain is overwhelming. I was a teacher of Literacy and also had to stop working due to my back Fusion and lack of mobility. Life has changed its not over. Have you had sorgery or is that not an option for you? Just wanted to say hello and let you knowlife can be lived with pain. Not easy. Welcome. ... Linda

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene

[Axelle]

Hi, i read your story and what i feel is envy! You are so strong malgré votre maladie! Vous m'excuserez mon anglais n'est pa terrible même si mes études on été faite en anglais..le français reste ma langue maternelle. I think you still have a lot to share about life your feelings... At least you are not alone!

[Prof de Rien]

i appreciate the welcome. i had meant to come back sooner to see if i had any responses but fell into what can only be described as an extended k-hole! (bad crps humor) my last "subanesthetic ketamine infusion" kicked booty for some reason but i am regaining my energy bit by bit.

i will see you around, then!

prof

[Prof de Rien]

Originally Posted by dovecottage

Welcome. Living in pain is overwhelming. I was a teacher of Literacy and also had to stop working due to my back Fusion and lack of mobility. Life has changed its not over. Have you had sorgery or is that not an option for you? Just wanted to say hello and let you knowlife can be lived with pain. Not easy. Welcome. ... Linda

thanks for the welcome, linda. i don't have any spine issues requiring surgery. i am an orthopedic mess, however, and had to have 7 major shoulder surgeries in the past 3 years in an attempt to ferret out the source of a persistent bone infection. otherwise, i would not recommend surgery to crps/rsd patients as it can be a precursor to "spread."

in fact, i "got" crps while i was recovering from a left shoulder replacement back in 2002. i was in ICU and fell, breaking my right leg and banging up that left arm even more -- within a few hours, i had developed crps in -- you guessed it! -- the right leg and left arm. i was not diagnosed with crps for over 19 months -- a delay which you all know was extremely detrimental.

but -- hey, this is just supposed to be a "hello." thanks for the welcome, and i will see you around... i hope you are doing well.

prof

[Prof de Rien]

thanks for saying hello, darlene, and for the easter wishes. i look forward to meeting the crps folks in the coming weeks.

i hope you're doing well --

prof

[Prof de Rien]

Originally Posted by Axelle

Hi, i read your story and what i feel is envy! You are so strong malgré votre maladie! Vous m'excuserez mon anglais n'est pa terrible même si mes études on été faite en anglais..le français reste ma langue maternelle. I think you still have a lot to share about life your feelings... At least you are not alone!

salut axelle, comment ça va? forte, moi? ha! c'est vrai que j'insiste sur le rire, sur l'absurdite comique de ma situation... alors, d'où viens-tu et où as-tu fait tes études? toi aussi, tu as le "syndrome"?! on se verra ici et là, sans doute!

prof