Hi - I've had lupus for the last 10 years and have been taking Plaquenil for the same amount of time. In the last 2 years, I have had problems with my balance, "heavy legs", triping over my own feet, vertigo, mood swings, and generally not enjoying life. I've been under the care of a neurologist for 9 months. My diagnosis ws polyneuropathy. My neurologist said the problems were coming from lupus - my rheumatologist said the neuropathy was NOT coming from lupus because I had not had a flareup in 10 years. They both agreed on the following: a surel nerve biopsy and IVig infusion in the hospital for 5 days. The results of the biopsy are not back yet. I just came home from the hospital where I had 5 straight days of IVig (3.5 hours each infusion), a brain MRI and a spinal tap. The MRI showed nothing more than a lot of fillings in my teeth, and the spinal tap results are still out. I can tell you this: I have never felt so good! I am a 67 year old retired female, and I now feel like I did when I was 30 years old....what a great feeling. My husband and I went shopping yesterday which is something I could only do for about 2 hours. We went from store to store for about 5 hours, and my husband had to stop and rest...great feeling. I have a follow-up visit with my neurologist in 4 weeks. I guess he will prescribe maintenance treatments in the future....I certainly hope so. I just wanted to tell everyone about my great IVig experience. Thanks for listening.

Here are a couple of links that may be of interest to you.

Peripheral Neuropathy
http://neurotalk.psychcentral.com/forum20.html

Autoimmune Diseases
http://neurotalk.psychcentral.com/forum44.html


Please feel free to kick your shoes off, pull up a chair and stay a while.
You are more than welcome to roam around all of the forums and join in where ever you feel comfortable.

You will find a large group of very kind and caring people who share a wealth of knowledge and soft shoulders to lean on when needed.

I look forward to seeing you around the board!

Abbie

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hello, and welcome to NT! This is such a nice place with many friendly, caring, and helpful people.

We're so glad you found us!