[zecorvus]

Hello, I am a wife and a mother of 2 in NE, Pennsylvania. I have recently been diagnosed with Arnold Chiari Malformation & Syringomyelia. I am 46 years old and was in a bad car accident when i was 17. I do not know what it came from. I have been for 2 MRI's, thorasic and cervical. I have 1 this week of the brain. I will see a neurosurgeon on May 27th and I am really scared.
Maybe it will be a relief to not have all of these symptoms after 29 years.
I have been told I had fibermyalgia, shingles, trigeminal neuralgia and suffer from nystagmus, strange palpatations, loss of feeling in legs and many other symptoms. It is nice to know there is such a wonderful group of people who share so much similar symptoms. I know now I am not alone.
Thank you to all,
ZeCorvus

[Abbie]

Hello Zecorvus
and
WELCOME to Neurotalk!

Here are a couple of forum links to help you find your way around and they may be of interest to you.

Arnold Chiari Malformation & Syringomyelia
http://neurotalk.psychcentral.com/forum71.html

Fibromyalgia and Chronic Fatigue
http://neurotalk.psychcentral.com/forum12.html

Trigeminal Neuralgia
http://neurotalk.psychcentral.com/forum26.html

Please feel free to roam around all of the forums and join in anywhere!
I hope you decided to stay a while... pull up a chair and kick your shoes off!! You have found a wonderful place full of very kind and caring people who share a wealth of knowledge and understanding.

I look forward to seeing you around the board.

Abbie

[Darlene]

Zecorvus,

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Seems you have been through some ruff times. Please keep us up to date.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[MelodyL]

Originally Posted by zecorvus

Hello, I am a wife and a mother of 2 in NE, Pennsylvania. I have recently been diagnosed with Arnold Chiari Malformation & Syringomyelia. I am 46 years old and was in a bad car accident when i was 17. I do not know what it came from. I have been for 2 MRI's, thorasic and cervical. I have 1 this week of the brain. I will see a neurosurgeon on May 27th and I am really scared.
Maybe it will be a relief to not have all of these symptoms after 29 years.
I have been told I had fibermyalgia, shingles, trigeminal neuralgia and suffer from nystagmus, strange palpatations, loss of feeling in legs and many other symptoms. It is nice to know there is such a wonderful group of people who share so much similar symptoms. I know now I am not alone.
Thank you to all,
ZeCorvus

Well, hi there.

My name is Melody and I'd like to welcome you to Neurotalk.

My sister in law, just this week was diagnosed with nstagmus, and Thursday she went to the ear doctor who did a hot air and a cold air test in her ears as well as sticking some kind of cone in her ear with electrodes all over her face.

She has been dizzy with vertigo and at first they thought it was the Lipitor she was on but they quickly changed their minds and said she has nstagmus. Are you on any kind of treatment for this condition?

Thanks much if you get a chance to reply.