[Flemibess]

I have had chronic rt sided pain( sinus, nose, cheek, teeth, ear,eye and scalp ) pain for 4 yes. It started with a viral infection during chemo therapy( I also have chronic lymphocytic leukemia ). I have been through 5 neurologist , infectious disease specialist, 2 neurosurgeons, and 2 net's. I have tried all the usual meds for trigeminal neuralgia, multiple antidepressants , and narcotics . Almost nothing has been effective. I have constant pain,pressure, burning. I currently use gabapentin and lidocaine patches. The gabapentin dulls the pain most days a bit, not so good today. I have trouble talking for any length of time most days, and it can be a torture to socialize .

All my doctors just seem to want to sweep this under the rug and not deal with it. My leukemia is darting to relapse again and the pain is increasing. I find I don't want to get out bed anymore... I just can't deal.

Has anybody found anything that can reduce the symptoms???? I just want to be able to function..to enjoy my family.

[tamiloo]

Welcome to Neuro Talk Flemibess
The pain your in must be horrendous...I have a little tooth pain and it drives me nuts.

We have a great forum for Trigminial Neuralgia below is the link...hope this helps! Take care!!

http://neurotalk.psychcentral.com/forum20.html

[mrsD]

There are some studies showing using acetyl carnitine with chemo lessens the likelihood of mitochondrondial damage to your nerve cells.

http://neurotalk.psychcentral.com/post653568-5.html

[Darlene]

Happy having you come to be with the whole family. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Seems you have been through some ruff times. Please keep us up to date.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene