My Name is Nubiene I found this site through surfing for information on the diagnoseses ive been given.
it has thrown me into a fixated doom shock angry state the ones I will mention now was discovered in 2009 via blood test and 2010 and I was not told until the 12th of July where I had another set of blood tests done by a Locum Doctor who steped in to take the clinic at the last moment.
He examined me and told me that HE believed I may have CFS OR CFS/ME OR MAYELOMA with the latter he wuold have to do some blood tests.
I recieved a phone call six days later stating that abnormal protein was found in my blood. He said he could not tell me more over the phone . I asked him could this protein cause pain in my body he said yes. When I recieved a report four days later it stated monocolonal gamapathy igG with Kappa Light chains and intermittent neutropaenia. and that these tests had as I SAID SHOWN UP IN BLOODS IN 2009 AND 2010 and was never discussed I was also diagnosed with chronic fybromyalga syndrome (CFS) which was told to me in the past 27yrs was neuropathic pain without any tests done. I have been told I HAVE BEEN REFFERED TO A HAEMOTOLOGIST and I WAIT WITH NERVOUSNESS dont know whats happening. BEEN TRING TO UNDERSTAND THE gi or ig/ levels 2.9 and neutropeania which is 1.0

You're having a really tough time, nubiene, & it may not resolve itself very quickly. Here's a link to the fibromyalgia forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=12

Stop by, ask questions, get to know the folks. You may not find anyone in your exact situation, but you'll come close.

I was diagnosed with chronic fatigue syndrome back in the 1980s, but that was in California where luckily I was living then. In most of the rest of the US, I would probably have gone undiagnosed. I'm having similar problems again, but after 8 yrs no answers. Fibromyalgia is mentioned, but it's still in the category that CFS was for lots of medicos. Some aren't convinced it's really organic, or at least that's my experience.

Take a deep breath when it gets bad. Keep coming back. Keep asking questions.

Prayers.

Oh how we understand your frustrations. I would be angry too. It's understandable that you're very upset, and you should be.

You do have some problems, worse problems now. You should have been informed of those results. It would have been to your advantage, I'm sure.

Be that as it is, you must collect yourself and give it your best here. You need all your strength.

There's lots of info here to do some research to find answers.

I pray you'll get the attention you need and deserve.

nubiene,

Happy to see you have come to be with us. As you can tell there are great and caring friends here to assist you, just let us know if we can be of any help. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Thank you very much for your kind words

Thank you for your response
I have seen a machine they are using for fybromyalga pain on a fybromyalga site have you had any experience with it at all its a good thing if it works better than all those meds
hope I have entered my reply right lol

Hi Nubiene and welcome

to keep your answers relevant I have moved the other 3 threads to 3 separate forums where they are best suited

here are the links to your questions so you can check for answers

Neutropenia question on General health & Rare Disorders http://neurotalk.psychcentral.com/sh...d.php?p=786999

Fibromyalgia question on the Fibro forum
http://neurotalk.psychcentral.com/sh...d.php?p=786996

monoclonal gamampathy on the Peripheral Neuropathy forum
http://neurotalk.psychcentral.com/thread153706.html

No, I have no experience with any machines. I know researchers are working with qigong masters on routines that will trigger chi points, working somewhat as acupuncture does--which works to various extents for a number of people. But machines are new to me.

You've got lots of company in thinking that meds are always 2nd choice.
Prayers & .

HI
This is a link to the small electro type device I read about
http://www.ukfibromyalgia.com/treatm...t-therapy.html

dont know if the quickreply is best or the one at the bottom of the thread my heads all over the place.