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11-18-2010, 07:15 AM | #1 | ||
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Junior Member
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..I have been reading on this site for 4 years now and have finally got the courage to register and post. I have small fiber perpheral neuropathy both arms and both legs, rheumatoid arthritis of all joints except the spine, autonomic neuropathy of stomach and bladder, hypothyroidism, and mixed connective tissue disease marker verified. Thankfully, my RA is currently in remission due to enbrel and leflumonide. My small fiber neuropathy is my current demon, but the pain is finally slowly starting to come under control with the help of alot of meds that leave me loopy. My husband who has lovingly taken care of me died 3 months ago so I am forced to do everything regardless of pain and weakness. I am looking forward to participating here and have already learned so much reading here.
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11-18-2010, 07:35 AM | #2 | |||
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Young Senior Elder Member
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Welcome to Neuro Talk catloucle..I'm so sorry for the loss of your husband.
Here is the link to our PN. forum http://neurotalk.psychcentral.com/forum20.html If you have been reading here for 4 years you already know that it's a great place to exchange information, get and give support and make friends. I'm glad you've joined us but sorry for the reason.
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11-18-2010, 11:02 AM | #3 | |||
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Elder
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Hello Catloucle and WELCOME to Neurotalk!!
I see Alffe has provided a link to our Peripheral Neuropathy Forum. Though you've been reading here for four (4) years and probably know your way around quite well... I just wanted to add and additional link that may help you. Here is a link to our Autoimmune Disease Forum Please feel free to roam around the forums and join in anywhere. If you have any questions of need assistance please don't hesitate to ask....Someone will always be along shortly to help you in any way that we can. I hope to see you around the boards. Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | catloucle (01-17-2011) |
11-20-2010, 02:05 AM | #4 | |||
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Legendary
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Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible. My thoughts and prayers are with you. Again welcome, looking forward to seeing you around. Darlene
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. "Life without God is like an unsharpened pencil -- it has no point.
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11-21-2010, 12:14 AM | #5 | |||
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Senior Member
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HELLO and Welcome! I'm so sorry for the loss of your husband. I too lost mine 9 years ago, and I still miss him terribly. I know how you must be feeling, because I remember where I was at 3 months.
I take Topamax for the nerve-type pain, and it doesn't make me loopy at all. I've talked with others who take it and they say the same thing. I'm wondering if maybe it might help you. I've been on it for 10 years, and I still haven't needed an increase in dosage!!! I'm on 400mg per day and it has stopped the burning/stabbing/tingling pain that was killing me! I have PN in the legs, due to a botched surgery. Again, I'm so sorry for you loss, and also for everything you suffer from! Bless your heart, you must be in terrible pain ! You will be in my prayers. God bless and take care. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
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07-25-2011, 02:19 AM | #6 | ||
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New Member
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Hey Mom, Thanks for sharing this wonderful site with my. Its nice to have a place to go to where others have the same problem as me. It makes me feel more like a person and less like a freak... I Love Ya <3
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"Thanks for this!" says: | Blessings2You (07-25-2011), BlueCarGal (07-25-2011) |
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