Hi to all, I enjoy this forum and this is my first post. I was dx with myasthenia gravis Jan 2010. The journey to this dx is a long one. In 2006 I went to the emergency room with a complaint of severe headache and right eye droop and was discharged witH dx of migraine headache. My followup with a neurologist was uneventfuL and he told me to look at old family photos as I probably always. had the droop.
I then had 3 episodes of uveitis and "something wrong with my vision". Long story short my uveitis improved, but my vision was worse. When I was able to articulate that I thought I had double vision my eye doctor sent me for an MRI of brain and orbits. It was found that I had something called Silent Sinus Sinus Syndrome. After multiple MD visits I was sent to a specialist in NYC who fixed me up good as new with surgery but he thought I has something more going on and referred me to another MD.
The neuro opthamologist examined me stated I probably had generalized myasthenia gravis and sent me to a neurologist in NYC It turns out I am seronegative and the diagnosis was confirmed with a tensilon test.
Since diagnosis I have had a rough patch what with this hot summer and my mestinon was increased to 60mg every 4 hours. I feel a little better but not normal and the double vision persists despite a prism on my glasses.
All things considered it could be a lot worse, it is nice to have this forum for support.