Hi everyone.

Im not sure this is the right site for me but i've pretty much nowhere else to go at this point as I've been to Pelvic pain sites, pudendal nerve sites etc. I basically suffer from a host of urological/pelvic problems but most of them are manageable and I could lead a normal life with them. But one symptom I cannot deal with anymore is a severe tingling in my scrotum. It started about 13 years ago and was accompanied by a bulge in my pelvic floor (area between **** and testicles). I assumed and still assume that its an injury and that the bulge may be a hernia of sorts even though I can't find any info about hernias in that region. I've been to a host of urologists over the years. Most of them did very little until one recently put me on Lyrica which did all but erase the tingling. I took myself off of the Lyrica because I thought it was a series of stretches and exercises that was helping me. I was wrong and am now back on the Lyrica and am waiting for it to kick in.

As I mentioned, I've had this horrible sensation for 13 years with a mysterious 3 year hiatus at one point. But it came back last fall and it makes life so difficult. If i equated it to pain I would put it at a 6 or 7 out of 10. I'm going to see a neurologist for the first time in a few weeks but was just curious if anybody else had this. I also sometimes get a numbness in the left testicle but that is pretty rare. I would be so greatful for any help.

Thanks.

I'm hoping to put you in touch with someone experiencing a similar condition. He's dealing with numbness of penis & scrotum from a herniated disk. Numbness & tingling? Maybe not as similar as I think. The original post isn't current but latest is. Plus others will be along to give you the benefit of their experience.

Here's the link to the forum, then look for the thread:

Men's Health: *http://neurotalk.psychcentral.com/forum114.html
-->Numbness in penis/scrotum from herniated disk

You might also want to post here, or at least check the threads:
Rare Disorders: *http://neurotalk.psychcentral.com/forum2.html

Please come back, ask questions, ask more questions, tell us whatever we can do to make the trek a bit easier. NeuroTalk has links to objective, useful information (articles, news stories, etc,) as well as peer-level support and camaraderie. Take what you need, give what you can, we'd always be pleased to find your shoes under the chair & feet up on the table!

I see you've seen Urologists, maybe you've also seen a specialist in colo-rectal surgery, but have any of them mentioned Spastic Pelvic Floor Disorder with Pudental Neuralgia? Your symptoms could certainly fit that condition; one that many doctors are still unfamiliar with, although awareness appears to be spreading.

Diagnosis consists of a MRI and EEG biofeedback, and with treatment varing from muscle relaxants through to surgery, treatment of choice seems to be physiotherapy by a therapist who specialises in pelvic floor conditions. A specialist physiotherapist would work your muscles and nerves from your abdomen to the thighs and buttocks external and internal. It's a bit invasive, but certainly worth a try.

I assume your doctor has ruled out chronic infection, both in your epididymis and your prostate gland because with pain in this area, most doctors would initially look for infection. With no infection present, and because tingling is nerve based, the muscle surrounding your prostate gland could be irritating the nerves around it. Again a physical therapist who specialises in pelvic floor therapy would be the person to see. They could determine if your muscles in the area are tight, and can treat it.

If you’ve had a vasectomy in the past, then one more thing to consider is Post Vasectomy Pain Syndrome, even though you describe tingling rather than pain. If you've not had the surgery then there's no need to read this site: http://www.vasectomy-information.com/moreinfo/pvps.htm

I daresay you’ve searched the internet for answers but here a few sites I found informative.

http://www.pudendalhelp.com/symptoms.html
http://www.theaword.org/index.php?op...d=90&Itemid=41
http://www.springerlink.com/content/m481856256l8r200/
http://www.london-urology.co.uk/scrotal%20problems.htm
http://www.netdoctor.co.uk/interacti...40458-f10.html

Good luck with getting a diagnosis; you'll need that before any effective treatment can begin.

http://www.pudendalhelp.com/home.html

http://www.pudendalhope.org/

http://en.wikipedia.org/wiki/Pudendal_nerve_entrapment


Problems with the pudendal nerve distribution are more common than many think, but is it underdiagnosed, and, as Koala mentions, really requires very specialized physicians and therapists.

Thank you, thank you, thank you to everyone whe responed (and to others who I hope will respond).

I didn't actually have a lot of expectations but you all provided me with some good info. The website Koala supplied about the nerve that runs from the abdomen down into the groin was particularly close to the symptoms I have.

I've been on those pudendal nerve sites before and about a week or two ago I thought that condition most closely matched mine. I've since backed off of that assumption a bit but still consider it.

The posts about other men who had conditions affecting the same region were helpful too. Makes me feel as though I'm not the only one in the world with this problem. And I've certainly considered that it could be a herniated disk issue.

So basically I need to see a neurologist I suppose.

But I do still have some other questions. I'm curious if after 13 years i'm beyond help and that my nerve(s) are too far damaged to be helped. Also, are there any supplements etc. that can reduce tingling? Like I said i'm waiting for the Lyrica to kick in but in case it doesn't, i'll be searching far and wide for any other medicine to help.

Thanks again. The info you all provided me could have me finally headed in the right direction.

I'm so glad you got off on the right track so quickly! You might want to take this over to the medical forum/s since there's so much more traffic there.

You've got my best wishes that you can now connect with the right doctor/s. 13 yrs is a long time, but they can do amazing things now. I think medicine has made great strides because of all the wars we've been in.

Take good, good care!

Take it to the medical forums on this site or sites elsewhere? I don't know a whole lot about this stuff.

Thanks

In my 1st posting to you above, the two links (the underlined Internet addresses starting with http://) will take you to the Men's Health & to the Rare Diseases Forums on the NeuroTalk site we're on now. You might start by going there.

The other links provided by Koala77 are for separate websites, not part of NeuroTalk or PsychCentral. Since you have a link, you probably won't notice much difference getting to them. Ditto, glenntaj's links.

How you use these is up to you. Try one at a time if you like or do them all at once. If you run into any problems, we'll be here.

I'm sure that BlueCarGirl meant well elmwood, but I do not believe that Rare Diseases is the right forum for you. Men's Health is where I suggest you post, and as you have already posted there .... hopefully you'll find that forum again easily.

Those links I gave you and the ones that glenntaj gave you are links to specific educational data, and as that is what you came here looking for, I hope you find them beneficial.

Unfortunately our Men's Health Forum has been rather quiet lately but should you continue to ask any questions over there, hopefully others will see it and come help you out. I look forward to hearing how you get on.

Koala77, being SuperModerator & more, is right: Stick with Men's Health!